Patient / Survivor Header
Page 1 of 4 1 2 3 4 >
Topic Options
#146249 - 02/21/12 02:54 PM Everything Tastes of Salt
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
This is the middle of week 4 of seven and I lost all sense of taste three weeks ago. Had a PEG placed last week which has helped a great deal. My biggest issue right now is that everything I attempt to drink has an overpowering salty taste. Anyone have this experience and figured out how to get some relief from it?
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146251 - 02/21/12 03:46 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 942
Loc: Ohio
Hi, Jack
it sounds like all tastebubs except salt have temporarily left the stage, so salt is front and center. What are you drinking?
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.

Top
#146252 - 02/21/12 04:09 PM Re: Everything Tastes of Salt [Re: Maria]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Drinking only sips of tap water and some ginger ale. The ginger ale gives just the least little relief but any water , even for swish and spit, is salty
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146256 - 02/21/12 05:09 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 5260
Loc: Toronto canada
UGH... that sucks... have you tried ensure...?
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

Top
#146263 - 02/21/12 06:44 PM Re: Everything Tastes of Salt [Re: Cheryld]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Yep I get Ensure via PEG tube several times a day.... Then I deal with the belching that goes with that. I'm just trying to figure out why, If i'm not taking any salt in anything I eat , that everything has an overpowering salty taste.
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146267 - 02/21/12 07:10 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
Ron said the same thing, he even stopped using salt completely when he salted everything he ate, after 2 yrs he is again using salt and even pepper! So I'd say it's part of the process of going thru this crappy cancer. Sorry but keep positive you just may get all back to normal or as normal as can be.
Good Luck!
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

Top
#146268 - 02/21/12 07:25 PM Re: Everything Tastes of Salt [Re: SUEZ]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks for the heads up..... I'll be looking forward to the end of this crap for sure
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146272 - 02/21/12 08:07 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9214
Loc: PA
Radiation can cause your taste buds to act crazy! Its a temporary thing. You will notice several different phases as you go thru this and your recovery. Some people find seltzer water appealing during treatment. Some have used that to rinse their mouths to help cut the mucous. I would suggest you rinse several times per day with 16oz of warm water, 2 tsp baking soda, omit the 2 tsp salt for now. This will help to neutralize your mouth and if you have any sores it will help to heal them.

Best wishes with your treatments!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#146279 - 02/21/12 11:19 PM Re: Everything Tastes of Salt [Re: ChristineB]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks for the idea Christine
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146286 - 02/22/12 02:41 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9214
Loc: PA
Your welcome Jack! Stick with us and we will help you get thru this. We are here 24/7 and can help with all kinds of advice. Im a wiz with feeding tube tricks. Keep up with a minimum of 48az water and 2500+ calories daily and you will get thru this easier. Best wishes with your treatments.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#146296 - 02/22/12 10:58 AM Re: Everything Tastes of Salt [Re: ChristineB]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
THe seltzer water helped my son a lot when he was in Rad Tx and the salty taste bothered him, too. I was always intrigued by how his taste buds reacted as some once familiar tastes for some things changed so drastically. He said coffee tasted like spaghetti sauce, honey tasted like dirt, chai tea tasted like black pepper. Some "super taster" people have taste buds that react very keenly to foods. I don't know if stress has anything to do with this, but while my son was in surgery, the turkey sandwich I tried to eat for lunch tasted like cardboard to me. I could not taste the turkey at all! When the taste buds started coming back again, it was a very pleasing and surprising for us. One day when Paul had not been able to taste anything sweet, he put one of those gourmet jelly beans in his mouth and excitedly told his daughter (5 year old at the time): "I can taste it!!! we all did a happy dance around the kitchen that day! It's amazing how the simplest things can bring such pleasure and good memories. So, hang in there, the taste buds will get better!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




Top
#146297 - 02/22/12 11:42 AM Re: Everything Tastes of Salt [Re: ChristineB]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks again everyone
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146298 - 02/22/12 11:55 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
In case it interests anyone, here's an intriguing article from Wikipedia all about taste buds and "super tasters":
http://en.wikipedia.org/wiki/Supertaster
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




Top
#146301 - 02/22/12 02:48 PM Re: Everything Tastes of Salt [Re: Anne-Marie]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Must be me LOL
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146309 - 02/22/12 10:33 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 942
Loc: Ohio
My husband lost the taste of salt completely for a while, but bitter held it's own through out therapy. Oddly, fruit (sour and sugar) was one of one of the first things that 'tasted right' when he was recovering. Chocolate is just now tasting good. Everyone is different!
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.

Top
#146320 - 02/23/12 05:57 AM Re: Everything Tastes of Salt [Re: Maria]
msmac Offline
Gold Member (200+ posts)

Registered: 05/01/11
Posts: 267
Loc: california
I went through a phase during treatment where everything tasted like pure salt, too. After awhile, I lost taste completely and it went away. After treatment, salt was the first taste to come back. So, once again, everything tasted super salty for awhile. It will pass. Hang in there!
_________________________
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.

Top
#146329 - 02/23/12 04:07 PM Re: Everything Tastes of Salt [Re: msmac]
Pandora99 Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Registered: 09/14/06
Posts: 1328
Loc: Winnipeg, Manitoba Canada
I can remember everything tasting like metal for awhile after radiation. That too passed. What I found interesting was that after my first set of radiation treatments I could not STAND tomato soup which I had previously loved. After my second set of radiation treatments, I again loved tomato soup. Go figure.

Donna
_________________________
Donna,61,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 11 yrs from 1st dx, 7 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL!

Top
#146346 - 02/24/12 02:18 AM Re: Everything Tastes of Salt [Re: ChristineB]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 805
Loc: NY
Kevin kept the bitter taste. Everything else was gone except that. He is now back to tasting everything, but every taste is very strong. Sweet things are almost too sweet. All the joys!! Blessings on the rest of your journey. You're not alone!!
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14

Top
#146356 - 02/24/12 09:35 AM Re: Everything Tastes of Salt [Re: KP5]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks to everyone for sharing their story. Today is the last day of week 4... three to go. I found that using ginger ale and sugarless, flavored soda water has helped a bunch with cutting the salty taste as well as clearing the thick secretions in the mouth and back of the throat. It sort of foams the junk away from the mouth and allows it to be spit out. I do that several times a day and once in the middle of the night and it has helped greatly.
Another tip for anyone interested is that Ibuprofen taken three at a time up to 3 X a day helps a lot with inflammation associated with the burning from the Rads to the throat allowing me to swallow more easily. It works well in combination with the 50 mg fentanyl patch I wear. The dose was approved by my Dr. at Duke.


Edited by Jack Snodgrass (02/24/12 09:36 AM)
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146358 - 02/24/12 09:54 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
Jack - It's good you found something that helps with cutting the salty taste and the mouth secretions. About the Ibuprofen, I was glad to hear that your Doctor approved the dosage. During his Tx, my son was taking way too much of the Ibuprofen while he was on other pain meds and even argued with me about what he could take. I became concerned and when I checked with the doctor's office, they told me he had been taking way too much Ibuprofen and that it could damage the liver. After that, I had to keep the Ibuprofen in my car and just leave a small daily amount with him when I was not there. So be really careful. Keep up the good progress and thanks for the update!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




Top
#146395 - 02/25/12 06:06 PM Re: Everything Tastes of Salt [Re: Anne-Marie]
Steve F. Offline
Platinum Member (300+ posts)

Registered: 10/08/06
Posts: 383
Loc: Hamilton, Ohio
Jack:
Please focus on staying hydrated. Towards the end of my treatment I got terribly constipated and it was due to pain meds (Particularly Fentanyl patch; Doc told me they absorb a lot of your hydration).
As for salt, that's funny it came up. We all react differently but 5 years out and some foods leave me with an overpowering salty after taste that can last hours. So that may hang with you indefinitely. I sure won't complain due to being able to eat and receive some sort of taste!
Best Wishes,
Steve
_________________________
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

Top
#146421 - 02/26/12 01:24 PM Re: Everything Tastes of Salt [Re: Anne-Marie]
vet tech Offline
Member

Registered: 02/19/12
Posts: 5
Loc: Minnesota
how long before taste came back for you?

Top
#146452 - 02/27/12 03:06 PM Re: Everything Tastes of Salt [Re: vet tech]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
I have no taste at this point but still have three more weeks of chemo/ rad to go . I get the impression it takes some time to get the taste buds back.
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146458 - 02/27/12 05:23 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9214
Loc: PA
This is only a temporary thing. Everyone is a little different in this. I would say most of us had some sort of taste a month post radiation with improvements being seen all the way til 2 years post rads. Usually about 2 or 3 months after finishing radiation you will see a huge difference from where you were.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#146461 - 02/27/12 07:18 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
mick Offline
Contributing Member (25+ posts)

Registered: 02/16/12
Posts: 26
Loc: boston,ma
i too got the salt taste very strongly after radiation, and also foods i used to love had no appeal. it does pass, and until it does, hydration really helps.
_________________________
after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember

Top
#146464 - 02/27/12 10:02 PM Re: Everything Tastes of Salt [Re: ChristineB]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thank goodness ... Frankly right now I have no hunger at all and am really having trouble just getting enough ensure in me to keep from being down more than about 3 # a week
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146468 - 02/27/12 11:50 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 805
Loc: NY
Kevin wasn't hungry either. He forced himself to eat scrambled eggs in the am and then Ensure the rest of the day. Truly, forced himself. He lost 54 pounds, but had it to lose so it's ok. He's perfect now! Has gained back maybe 5 pounds.
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14

Top
#146470 - 02/27/12 11:57 PM Re: Everything Tastes of Salt [Re: KP5]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9214
Loc: PA
My doctors and nurses and also nutritionist all warned me about losing weight. They all told me their goal was for me to not lose any weight. You must push yourself to maintain your weight, once it starts dropping off you will begin to feel lousy.

Push to take in a minimum of 48 oz of water and 2500 calories daily. Getting more is even better. Dont skimp one day thinking you will make it up the next. It doesnt work that way. That will end up landing you in the hospital for malnutrition and dehydration. Once things get rough, you can go downhill very quickly so please push yourself.

You can get Carnation Very High Calorie (VHC) thru the green Amazon link on the main forum pages. This will help OCF with a small kickback. Carnation VHC has 560 calories per can so it will help you to easier get your daily calories.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#147830 - 04/05/12 11:50 PM Re: Everything Tastes of Salt [Re: ChristineB]
BuffaloFan Offline
Contributing Member (25+ posts)

Registered: 04/05/12
Posts: 30
Loc: Rochester NY USA
Everything tastes salty to me after the surgery. I found that brushing with Biotene Toothpaste helped. It also helps with dry mouth.
_________________________
squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day

Top
#156474 - 10/19/12 11:55 PM Re: Everything Tastes of Salt [Re: msmac]
LeftyS7 Offline
Supporting Member (50+ posts)

Registered: 09/30/12
Posts: 64
Loc: Reno, NV
Msmac: How long did the salt taste last? I'm 7 weeks out of treatment and everything tastes like pure salt. Fruit is especially vile tasting. That, and the hyper-sense of smell that I have, is making it nearly impossible to eat anything (which I desperately want to do so that I can get off my PEG). Oatmeal and Cream of Wheat with loads of brown sugar are tolerable for solid foods as is avocado but I'd like to be able to eat more than that. Ensure and Scandishakes are getting old and don't taste great, either.

Thanks.


Edited by LeftyS7 (10/19/12 11:56 PM)
_________________________
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13

Top
#156534 - 10/21/12 05:48 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Steve F. Offline
Platinum Member (300+ posts)

Registered: 10/08/06
Posts: 383
Loc: Hamilton, Ohio
Coming up on six years out from treatment and if I eat processed food (Boxed, packaged, etc) and don't stay VERY hydrated I get an overwhelming salty taste. Not that I'm complaining because my diet has continued to expand and now includes a little bit of spice (I used to love "Hot & spicy" foods). Just keep trucking, experimenting, and stay hydrated.

Best Wishes,
Steve
_________________________
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

Top
#156537 - 10/21/12 06:20 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Mausmish Offline
Supporting Member (50+ posts)

Registered: 09/10/12
Posts: 74
Loc: Maryland, USA
Lefty, try distilled water. All other water tasted terrible to me after chemo but the distilled was okay, a great suggestion from my niece who drank it while she was pregnant. Karen
_________________________
mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads

Top
#156540 - 10/21/12 11:36 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
That's a good idea about the distilled water! My son could even taste the salt in the low sodium soups and even accused me of putting salt in his chicken noodle soup after he had expressly told me to get the low sodium soup. The taste bud for salt must be very active. It's coming up on 7 years for my son since he completed treatment but I remember how he said that certain areas of his tongue had certain tastes of their own and it seemed to him that each of the taste buds had their own reaction to taste. It really does get better, though and soon you will see small improvements and each one will be a celebration! Paul would try everything on specific parts of his tongue to see what reaction he would have and the day that he could taste the sweet taste of one M & M, it was a celebration - he was so happy, you would have thought he had invented sliced bread!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




Top
#156833 - 10/27/12 09:23 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
LeftyS7 Offline
Supporting Member (50+ posts)

Registered: 09/30/12
Posts: 64
Loc: Reno, NV
I taste salt w/o eating or drinking anything. It does seem somewhat less pronounced lately. I actually find that eating things that are normally salty or would go well with salt taste better than sweet things.
_________________________
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13

Top
Page 1 of 4 1 2 3 4 >

Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online
0 registered (), 10 Guests and 3 Spiders online.
Key: Admin, Global Mod, Mod
Forum Stats
10,880 Registered Members
23 Forums
16,681 Topics
188,091 Posts

Most users ever online: 306 @ 08/21/16 04:53 PM
Top Posters
ChristineB 9214
davidcpa 8311
Cheryld 5260
Brian Hill 4734
Gary 3552
Newest Members
Colm, survivor007007, Thomas P, Valerie G., Staceyk
10879 Registered Users
Brag Box