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#146395 - 02/25/12 06:06 PM Re: Everything Tastes of Salt [Re: Anne-Marie]  
Joined: Oct 2006
Posts: 383
Steve F. Offline
Platinum Member (300+ posts)
Steve F.  Offline
Platinum Member (300+ posts)

Joined: Oct 2006
Posts: 383
Hamilton, Ohio
Jack:
Please focus on staying hydrated. Towards the end of my treatment I got terribly constipated and it was due to pain meds (Particularly Fentanyl patch; Doc told me they absorb a lot of your hydration).
As for salt, that's funny it came up. We all react differently but 5 years out and some foods leave me with an overpowering salty after taste that can last hours. So that may hang with you indefinitely. I sure won't complain due to being able to eat and receive some sort of taste!
Best Wishes,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

#146421 - 02/26/12 01:24 PM Re: Everything Tastes of Salt [Re: Anne-Marie]  
Joined: Feb 2012
Posts: 5
vet tech Offline
Member
vet tech  Offline
Member

Joined: Feb 2012
Posts: 5
Minnesota
how long before taste came back for you?

#146452 - 02/27/12 03:06 PM Re: Everything Tastes of Salt [Re: vet tech]  
Joined: Jan 2012
Posts: 25
Jack Snodgrass Offline
Contributing Member (25+ posts)
Jack Snodgrass  Offline
Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 25
United States
I have no taste at this point but still have three more weeks of chemo/ rad to go . I get the impression it takes some time to get the taste buds back.


64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
#146458 - 02/27/12 05:23 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
This is only a temporary thing. Everyone is a little different in this. I would say most of us had some sort of taste a month post radiation with improvements being seen all the way til 2 years post rads. Usually about 2 or 3 months after finishing radiation you will see a huge difference from where you were.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#146461 - 02/27/12 07:18 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]  
Joined: Feb 2012
Posts: 26
mick Offline
Contributing Member (25+ posts)
mick  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 26
boston,ma
i too got the salt taste very strongly after radiation, and also foods i used to love had no appeal. it does pass, and until it does, hydration really helps.


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
#146464 - 02/27/12 10:02 PM Re: Everything Tastes of Salt [Re: ChristineB]  
Joined: Jan 2012
Posts: 25
Jack Snodgrass Offline
Contributing Member (25+ posts)
Jack Snodgrass  Offline
Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 25
United States
Thank goodness ... Frankly right now I have no hunger at all and am really having trouble just getting enough ensure in me to keep from being down more than about 3 # a week


64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
#146468 - 02/27/12 11:50 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]  
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
KP5  Offline
"Above & Beyond" Member (500+ posts)

Joined: Oct 2011
Posts: 805
NY
Kevin wasn't hungry either. He forced himself to eat scrambled eggs in the am and then Ensure the rest of the day. Truly, forced himself. He lost 54 pounds, but had it to lose so it's ok. He's perfect now! Has gained back maybe 5 pounds.


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
#146470 - 02/27/12 11:57 PM Re: Everything Tastes of Salt [Re: KP5]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
My doctors and nurses and also nutritionist all warned me about losing weight. They all told me their goal was for me to not lose any weight. You must push yourself to maintain your weight, once it starts dropping off you will begin to feel lousy.

Push to take in a minimum of 48 oz of water and 2500 calories daily. Getting more is even better. Dont skimp one day thinking you will make it up the next. It doesnt work that way. That will end up landing you in the hospital for malnutrition and dehydration. Once things get rough, you can go downhill very quickly so please push yourself.

You can get Carnation Very High Calorie (VHC) thru the green Amazon link on the main forum pages. This will help OCF with a small kickback. Carnation VHC has 560 calories per can so it will help you to easier get your daily calories.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#147830 - 04/05/12 11:50 PM Re: Everything Tastes of Salt [Re: ChristineB]  
Joined: Apr 2012
Posts: 30
BuffaloFan Offline
Contributing Member (25+ posts)
BuffaloFan  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 30
Rochester NY USA
Everything tastes salty to me after the surgery. I found that brushing with Biotene Toothpaste helped. It also helps with dry mouth.


squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day
#156474 - 10/19/12 11:55 PM Re: Everything Tastes of Salt [Re: msmac]  
Joined: Sep 2012
Posts: 64
LeftyS7 Offline
Supporting Member (50+ posts)
LeftyS7  Offline
Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
Reno, NV
Msmac: How long did the salt taste last? I'm 7 weeks out of treatment and everything tastes like pure salt. Fruit is especially vile tasting. That, and the hyper-sense of smell that I have, is making it nearly impossible to eat anything (which I desperately want to do so that I can get off my PEG). Oatmeal and Cream of Wheat with loads of brown sugar are tolerable for solid foods as is avocado but I'd like to be able to eat more than that. Ensure and Scandishakes are getting old and don't taste great, either.

Thanks.

Last edited by LeftyS7; 10/19/12 11:56 PM.

Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
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