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#146296 - 02/22/12 10:58 AM Re: Everything Tastes of Salt [Re: ChristineB]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2595
Loc: TN
THe seltzer water helped my son a lot when he was in Rad Tx and the salty taste bothered him, too. I was always intrigued by how his taste buds reacted as some once familiar tastes for some things changed so drastically. He said coffee tasted like spaghetti sauce, honey tasted like dirt, chai tea tasted like black pepper. Some "super taster" people have taste buds that react very keenly to foods. I don't know if stress has anything to do with this, but while my son was in surgery, the turkey sandwich I tried to eat for lunch tasted like cardboard to me. I could not taste the turkey at all! When the taste buds started coming back again, it was a very pleasing and surprising for us. One day when Paul had not been able to taste anything sweet, he put one of those gourmet jelly beans in his mouth and excitedly told his daughter (5 year old at the time): "I can taste it!!! we all did a happy dance around the kitchen that day! It's amazing how the simplest things can bring such pleasure and good memories. So, hang in there, the taste buds will get better!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#146297 - 02/22/12 11:42 AM Re: Everything Tastes of Salt [Re: ChristineB]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks again everyone
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

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#146298 - 02/22/12 11:55 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2595
Loc: TN
In case it interests anyone, here's an intriguing article from Wikipedia all about taste buds and "super tasters":
http://en.wikipedia.org/wiki/Supertaster
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#146301 - 02/22/12 02:48 PM Re: Everything Tastes of Salt [Re: Anne-Marie]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Must be me LOL
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

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#146309 - 02/22/12 10:33 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
My husband lost the taste of salt completely for a while, but bitter held it's own through out therapy. Oddly, fruit (sour and sugar) was one of one of the first things that 'tasted right' when he was recovering. Chocolate is just now tasting good. Everyone is different!
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#146320 - 02/23/12 05:57 AM Re: Everything Tastes of Salt [Re: Maria]
msmac Offline
Gold Member (200+ posts)

Registered: 05/01/11
Posts: 266
Loc: california
I went through a phase during treatment where everything tasted like pure salt, too. After awhile, I lost taste completely and it went away. After treatment, salt was the first taste to come back. So, once again, everything tasted super salty for awhile. It will pass. Hang in there!
_________________________
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.

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#146329 - 02/23/12 04:07 PM Re: Everything Tastes of Salt [Re: msmac]
Pandora99 Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Registered: 09/14/06
Posts: 1319
Loc: Winnipeg, Manitoba Canada
I can remember everything tasting like metal for awhile after radiation. That too passed. What I found interesting was that after my first set of radiation treatments I could not STAND tomato soup which I had previously loved. After my second set of radiation treatments, I again loved tomato soup. Go figure.

Donna
_________________________
Donna,60,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 10 yrs from 1st dx, 6 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! Cancer does not eliminate vanity - I would still rather be 59!

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#146346 - 02/24/12 02:18 AM Re: Everything Tastes of Salt [Re: ChristineB]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Kevin kept the bitter taste. Everything else was gone except that. He is now back to tasting everything, but every taste is very strong. Sweet things are almost too sweet. All the joys!! Blessings on the rest of your journey. You're not alone!!
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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#146356 - 02/24/12 09:35 AM Re: Everything Tastes of Salt [Re: KP5]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks to everyone for sharing their story. Today is the last day of week 4... three to go. I found that using ginger ale and sugarless, flavored soda water has helped a bunch with cutting the salty taste as well as clearing the thick secretions in the mouth and back of the throat. It sort of foams the junk away from the mouth and allows it to be spit out. I do that several times a day and once in the middle of the night and it has helped greatly.
Another tip for anyone interested is that Ibuprofen taken three at a time up to 3 X a day helps a lot with inflammation associated with the burning from the Rads to the throat allowing me to swallow more easily. It works well in combination with the 50 mg fentanyl patch I wear. The dose was approved by my Dr. at Duke.


Edited by Jack Snodgrass (02/24/12 09:36 AM)
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146358 - 02/24/12 09:54 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2595
Loc: TN
Jack - It's good you found something that helps with cutting the salty taste and the mouth secretions. About the Ibuprofen, I was glad to hear that your Doctor approved the dosage. During his Tx, my son was taking way too much of the Ibuprofen while he was on other pain meds and even argued with me about what he could take. I became concerned and when I checked with the doctor's office, they told me he had been taking way too much Ibuprofen and that it could damage the liver. After that, I had to keep the Ibuprofen in my car and just leave a small daily amount with him when I was not there. So be really careful. Keep up the good progress and thanks for the update!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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