#146249 - 02/21/12 06:54 AM
Everything Tastes of Salt
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Contributing Member (25+ posts)
Registered: 01/27/12
Posts: 25
Loc: United States
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This is the middle of week 4 of seven and I lost all sense of taste three weeks ago. Had a PEG placed last week which has helped a great deal. My biggest issue right now is that everything I attempt to drink has an overpowering salty taste. Anyone have this experience and figured out how to get some relief from it?
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64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
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#146251 - 02/21/12 07:46 AM
Re: Everything Tastes of Salt
[Re: Jack Snodgrass]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 708
Loc: Ohio
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Hi, Jack
it sounds like all tastebubs except salt have temporarily left the stage, so salt is front and center. What are you drinking?
_________________________
Caregiver to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 and 3/2012 clear, 1/2013 physical exam clear
On thyroid pills. Getting slightly less sensitive to hot peppers, and can handle sweet hungarian paprika again. Life is good.
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#146252 - 02/21/12 08:09 AM
Re: Everything Tastes of Salt
[Re: Maria]
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Contributing Member (25+ posts)
Registered: 01/27/12
Posts: 25
Loc: United States
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Drinking only sips of tap water and some ginger ale. The ginger ale gives just the least little relief but any water , even for swish and spit, is salty
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
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#146256 - 02/21/12 09:09 AM
Re: Everything Tastes of Salt
[Re: Jack Snodgrass]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3459
Loc: Toronto canada
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UGH... that sucks... have you tried ensure...?
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#146263 - 02/21/12 10:44 AM
Re: Everything Tastes of Salt
[Re: Cheryld]
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Contributing Member (25+ posts)
Registered: 01/27/12
Posts: 25
Loc: United States
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Yep I get Ensure via PEG tube several times a day.... Then I deal with the belching that goes with that. I'm just trying to figure out why, If i'm not taking any salt in anything I eat , that everything has an overpowering salty taste.
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
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#146267 - 02/21/12 11:10 AM
Re: Everything Tastes of Salt
[Re: Jack Snodgrass]
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"Above & Beyond" Member (500+ posts)
Registered: 07/21/10
Posts: 528
Loc: AURORA, OH
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Ron said the same thing, he even stopped using salt completely when he salted everything he ate, after 2 yrs he is again using salt and even pepper! So I'd say it's part of the process of going thru this crappy cancer. Sorry but keep positive you just may get all back to normal or as normal as can be.
Good Luck!
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CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
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#146268 - 02/21/12 11:25 AM
Re: Everything Tastes of Salt
[Re: SUEZ]
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Contributing Member (25+ posts)
Registered: 01/27/12
Posts: 25
Loc: United States
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Thanks for the heads up..... I'll be looking forward to the end of this crap for sure
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
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#146272 - 02/21/12 12:07 PM
Re: Everything Tastes of Salt
[Re: Jack Snodgrass]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6721
Loc: PA
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Radiation can cause your taste buds to act crazy! Its a temporary thing. You will notice several different phases as you go thru this and your recovery. Some people find seltzer water appealing during treatment. Some have used that to rinse their mouths to help cut the mucous. I would suggest you rinse several times per day with 16oz of warm water, 2 tsp baking soda, omit the 2 tsp salt for now. This will help to neutralize your mouth and if you have any sores it will help to heal them.
Best wishes with your treatments!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#146279 - 02/21/12 03:19 PM
Re: Everything Tastes of Salt
[Re: ChristineB]
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Contributing Member (25+ posts)
Registered: 01/27/12
Posts: 25
Loc: United States
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Thanks for the idea Christine
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12
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#146286 - 02/21/12 06:41 PM
Re: Everything Tastes of Salt
[Re: Jack Snodgrass]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6721
Loc: PA
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Your welcome Jack! Stick with us and we will help you get thru this. We are here 24/7 and can help with all kinds of advice. Im a wiz with feeding tube tricks. Keep up with a minimum of 48az water and 2500+ calories daily and you will get thru this easier. Best wishes with your treatments.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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