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#146249 - 02/21/12 02:54 PM Everything Tastes of Salt
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
This is the middle of week 4 of seven and I lost all sense of taste three weeks ago. Had a PEG placed last week which has helped a great deal. My biggest issue right now is that everything I attempt to drink has an overpowering salty taste. Anyone have this experience and figured out how to get some relief from it?
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

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#146251 - 02/21/12 03:46 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 856
Loc: Ohio
Hi, Jack
it sounds like all tastebubs except salt have temporarily left the stage, so salt is front and center. What are you drinking?
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#146252 - 02/21/12 04:09 PM Re: Everything Tastes of Salt [Re: Maria]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Drinking only sips of tap water and some ginger ale. The ginger ale gives just the least little relief but any water , even for swish and spit, is salty
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

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#146256 - 02/21/12 05:09 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4762
Loc: Toronto canada
UGH... that sucks... have you tried ensure...?
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#146263 - 02/21/12 06:44 PM Re: Everything Tastes of Salt [Re: Cheryld]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Yep I get Ensure via PEG tube several times a day.... Then I deal with the belching that goes with that. I'm just trying to figure out why, If i'm not taking any salt in anything I eat , that everything has an overpowering salty taste.
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146267 - 02/21/12 07:10 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
Ron said the same thing, he even stopped using salt completely when he salted everything he ate, after 2 yrs he is again using salt and even pepper! So I'd say it's part of the process of going thru this crappy cancer. Sorry but keep positive you just may get all back to normal or as normal as can be.
Good Luck!
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#146268 - 02/21/12 07:25 PM Re: Everything Tastes of Salt [Re: SUEZ]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks for the heads up..... I'll be looking forward to the end of this crap for sure
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

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#146272 - 02/21/12 08:07 PM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8174
Loc: PA
Radiation can cause your taste buds to act crazy! Its a temporary thing. You will notice several different phases as you go thru this and your recovery. Some people find seltzer water appealing during treatment. Some have used that to rinse their mouths to help cut the mucous. I would suggest you rinse several times per day with 16oz of warm water, 2 tsp baking soda, omit the 2 tsp salt for now. This will help to neutralize your mouth and if you have any sores it will help to heal them.

Best wishes with your treatments!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#146279 - 02/21/12 11:19 PM Re: Everything Tastes of Salt [Re: ChristineB]
Jack Snodgrass Offline
Contributing Member (25+ posts)

Registered: 01/27/12
Posts: 25
Loc: United States
Thanks for the idea Christine
_________________________
64 YO M Non Smoker ,light drinker Dx 11/11 SCC Stg IV BOT/L
Tx Carboplatin & Docetaxel weekly and Rad daily X 7 weeks
PEG in 2/12 out 6/12

Top
#146286 - 02/22/12 02:41 AM Re: Everything Tastes of Salt [Re: Jack Snodgrass]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8174
Loc: PA
Your welcome Jack! Stick with us and we will help you get thru this. We are here 24/7 and can help with all kinds of advice. Im a wiz with feeding tube tricks. Keep up with a minimum of 48az water and 2500+ calories daily and you will get thru this easier. Best wishes with your treatments.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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