| | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I wanted to let everyone know I will be the speaker at the Nashville Oral Cancer walk on April 14th. Ive already heard from a few of you that you will be joining me there. Some will be driving several hours to attend which is true dedication. Im very excited to get this opportunity to be a part of this event. Its their 4th walk this year! Nashville walk I will also be speaking at the Philadelphia Oral Cancer walk/run on April 29th. This will be their 4th year as well. I know there are many OCF members who live around the Philadelphia area. So far I have heard from 7 OCF friends who will be coming out to join me at this event. I am greatly looking forward to seeing everyone and hopefully meeting even more of our OCF family. Philadelphia walk I hope that everyone reading this post will help to spread awareness by promoting these walks. These events are so important to get the communities involved and give free screenings. If you know anyone in these areas, please encourage them to come out and support our efforts. If OCF has helped you or a loved one then please take a few hours of your time and attend one of the walks. Also bring a few friends along with you. Im sure you wouldnt wish oral cancer on your worst enemy so help your friends and family by making certain they have had a free oral cancer screening. Oral cancer knows no boundaries, it affects the young and old, smokers and non-smokers, HPV- or +. Please help support OCF at these events so OCF can continue to fund research projects and help to make oral cancer a thing of the past. I will be setting up a fund raising page in the near future, if you cant attend then please help by giving a donation if you are able to. Thanks everyone!
Last edited by ChristineB; 03-03-2012 08:44 AM. Reason: change link
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Christine:
I am so hoping to join/meet you in Nashville - Im trying to make an appointment (esophagus/swallowing specialist) at Nashville's Vanderbilt Hospital for April 16th, and then trying to work out some way to be there on the 14th. Nashville is 2 1/2 hours from my town, Huntsville, AL, but will try to figure out something. I'll be watching for your fund-raising page.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | What you do here on ocf and all the work you do for the walks and raising awareness is inspirational Christine. Wishful thinking that I could attend one of these walks one day.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | How wonderful Christine that you will be meeting with so many of our OCF family at these 2 walks in April. Like Wendy I would love to be there to hear you speak and hope to make it one day  Hope there will be some video and lots of pictures from both the Nashville walk and Philadelphia walk.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | You Rock Christine! You are going to give one great speech!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I have finally added a fund raising page. My goal is a lofty one that I hope to reach. Please help OCF by making a donation. Working together to raise money will allow OCF to fund research projects and promote awareness thru screening events. Please give what you can! Every dollar counts. ChristineB's fundraising page
Last edited by ChristineB; 03-03-2012 08:43 AM. Reason: change link
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Hey, Christine, I found your page....you are going to do great as always... you go girl !
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Thank you for your generosity Ingrid!!!! Its a start towards my goal. I appreciate your donation, thank you!!!
Last edited by ChristineB; 03-03-2012 08:42 AM. Reason: change link
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | I have swallowing problems and have been trying to get an appointment with a noted gastroenterologist at Nashville's Vanderbilt Hospital. I've just been informed I have an appointment on April 16. Christine, I know you are speaking at the Nashville walk on the 14th. I live about 2-1/2 hours from Nashville, but will do my best to try to go several days early for my appointment so I can hopefully join the walk, or at least maybe get to meet you and some of the other OCF members who will be there perhaps through the 17th. Please PM me as to where you will be staying and how long you will be there. Meeting you in person and some of the others will be a thrill of a lifetime for me.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Yeah Julieann!!! I really hope you will be able to make arrangements so you can attend. The walks are so much fun. Its impossible to explain how good it feels when you finally get to meet other OC survivors in person. Ive been lucky and have had the opportunity to meet many OCF members in person. They are all very special people who I am proud to call my friends.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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