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#145546 - 02/08/12 12:52 AM perineural invasion  
Joined: Mar 2002
Posts: 4,736
Brian Hill Offline
OCF Founder
Brian Hill  Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,736
Boise, ID and Portland, OR


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#145547 - 02/08/12 01:04 AM Re: perineural invasion [Re: Brian Hill]  
Joined: Jan 2012
Posts: 112
braziliangirl82 Offline
Senior Member (100+ posts)
braziliangirl82  Offline
Senior Member (100+ posts)

Joined: Jan 2012
Posts: 112
br
Great video... Thanks!


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
#145549 - 02/08/12 01:25 AM Re: perineural invasion [Re: braziliangirl82]  
Joined: Jun 2007
Posts: 9,625
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,625
PA
I love TED. They have such interesting videos. I love the diversity of so many different subjects.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#145554 - 02/08/12 02:00 AM Re: perineural invasion [Re: ChristineB]  
Joined: Jul 2007
Posts: 939
debandbill Offline
"Above & Beyond" Member (500+ posts)
debandbill  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Punta Gorda, Florida
Wow! Like you say...a game changer.

Deg


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#145557 - 02/08/12 02:47 AM Re: perineural invasion [Re: debandbill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Absolutely!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#145560 - 02/08/12 04:26 AM Re: perineural invasion [Re: Cheryld]  
Joined: Aug 2011
Posts: 593
Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 593
MA
I wish this forum had a "like" button!


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
42 years old now...I wasn't sure I would make it! Hoping for 40 more!
#145570 - 02/08/12 01:26 PM Re: perineural invasion [Re: Kerri]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant. smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#145575 - 02/08/12 04:40 PM Re: perineural invasion [Re: Cheryld]  
Joined: Jan 2012
Posts: 14
Mark B Offline
Member
Mark B  Offline
Member

Joined: Jan 2012
Posts: 14
San Diego, CA
As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.


Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male
#148342 - 04/16/12 12:55 AM Re: perineural invasion [Re: Mark B]  
Joined: Apr 2012
Posts: 32
KenEggman Offline
Contributing Member (25+ posts)
KenEggman  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 32
VA, USA
Thank you for sharing this. Very informative.


48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
#148435 - 04/17/12 10:05 PM Re: perineural invasion [Re: KenEggman]  
Joined: Jul 2009
Posts: 1,366
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,366
Los Angeles
A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!

(oh and I remember seeing both the crows talk and the stroke talk - great stuff)


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17

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