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#145546 02-07-2012 05:52 PM
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Those of you who have been around here for awhile know that I am a big fan of TED.com If you are not aware of what it is, do yourself a favor and a couple times a week look at a couple of less than 10 minute videos there, they will inform, enlighten, and change the way you think about things. For new people to TED, a couple of random ones to start with might be these:

http://www.ted.com/talks/lang/en/joshua_klein_on_the_intelligence_of_crows.html

http://blog.ted.com/2008/03/12/jill_bolte_tayl/

Anyway, an important discovery regarding head and neck cancers, and recognizing a new way of seeing that they are actually there, when conventional imaging doesn't do the job, was on a regional TED seminar. The presentation is not up to TED standards itself, but the information is really game changing, and something that we all need to consider asking for when we have symptoms that we know are dangerous but scans do not find exactly where the problem is.

This has to do with the manner in which cancer can travel from location to location, in a way which we are not paying enough attention to - perineural invasion. We all know about circulatory and lymph system spread of the disease, but this is a mechanism that there is now a very simple way to discover� by scanning it differently.

http://www.youtube.com/watch?v=xVVDHZr7erk&feature=share



Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Great video... Thanks!


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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I love TED. They have such interesting videos. I love the diversity of so many different subjects.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Wow! Like you say...a game changer.

Deg


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Absolutely!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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I wish this forum had a "like" button!


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #145570 02-08-2012 06:26 AM
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I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant. smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.


Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male
Mark B #148342 04-15-2012 05:55 PM
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Thank you for sharing this. Very informative.


48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
Joined: Jul 2009
Posts: 1,406
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A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!

(oh and I remember seeing both the crows talk and the stroke talk - great stuff)


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18

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