#145549 - 02/08/12 01:25 AM
Re: perineural invasion
[Re: braziliangirl82]
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Joined: Jun 2007
Posts: 9,677
ChristineB
Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007
Posts: 9,677
PA
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I love TED. They have such interesting videos. I love the diversity of so many different subjects.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive 
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#145554 - 02/08/12 02:00 AM
Re: perineural invasion
[Re: ChristineB]
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Joined: Jul 2007
Posts: 939
debandbill
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)
Joined: Jul 2007
Posts: 939
Punta Gorda, Florida
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Wow! Like you say...a game changer.
Deg
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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#145557 - 02/08/12 02:47 AM
Re: perineural invasion
[Re: debandbill]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145560 - 02/08/12 04:26 AM
Re: perineural invasion
[Re: Cheryld]
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Joined: Aug 2011
Posts: 593
Kerri
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)
Joined: Aug 2011
Posts: 593
MA
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I wish this forum had a "like" button!
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
42 years old now...I wasn't sure I would make it! Hoping for 40 more!
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#145570 - 02/08/12 01:26 PM
Re: perineural invasion
[Re: Kerri]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145575 - 02/08/12 04:40 PM
Re: perineural invasion
[Re: Cheryld]
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Joined: Jan 2012
Posts: 14
Mark B
Member
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Member
Joined: Jan 2012
Posts: 14
San Diego, CA
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As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.
Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male
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#148342 - 04/16/12 12:55 AM
Re: perineural invasion
[Re: Mark B]
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Joined: Apr 2012
Posts: 32
KenEggman
Contributing Member (25+ posts)
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Contributing Member (25+ posts)
Joined: Apr 2012
Posts: 32
VA, USA
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Thank you for sharing this. Very informative.
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
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#148435 - 04/17/12 10:05 PM
Re: perineural invasion
[Re: KenEggman]
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Joined: Jul 2009
Posts: 1,370
David2
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)
Joined: Jul 2009
Posts: 1,370
Los Angeles
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A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!
(oh and I remember seeing both the crows talk and the stroke talk - great stuff)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17
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