#145546 - 02/08/12 12:52 AM
perineural invasion
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OCF Founder
Patient Advocate (old timer, 2000 posts)
Registered: 03/18/02
Posts: 4734
Loc: Laguna Niguel, CA
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_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#145547 - 02/08/12 01:04 AM
Re: perineural invasion
[Re: Brian Hill]
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Senior Member (100+ posts)
Registered: 01/26/12
Posts: 111
Loc: br
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Great video... Thanks!
_________________________
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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#145549 - 02/08/12 01:25 AM
Re: perineural invasion
[Re: braziliangirl82]
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 9247
Loc: PA
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I love TED. They have such interesting videos. I love the diversity of so many different subjects.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo extended hospital stay, ICU & burn unit PICC line w/ IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#145554 - 02/08/12 02:00 AM
Re: perineural invasion
[Re: ChristineB]
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"Above & Beyond" Member (500+ posts)
Registered: 07/12/07
Posts: 939
Loc: Punta Gorda, Florida
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Wow! Like you say...a game changer.
Deg
_________________________
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
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#145557 - 02/08/12 02:47 AM
Re: perineural invasion
[Re: debandbill]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 5260
Loc: Toronto canada
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Absolutely!!!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145560 - 02/08/12 04:26 AM
Re: perineural invasion
[Re: Cheryld]
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"Above & Beyond" Member (500+ posts)
Registered: 08/08/11
Posts: 592
Loc: MA
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I wish this forum had a "like" button!
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37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
42 years old now...I wasn't sure I would make it! Hoping for 40 more!
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#145570 - 02/08/12 01:26 PM
Re: perineural invasion
[Re: Kerri]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 5260
Loc: Toronto canada
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I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant.
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Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145575 - 02/08/12 04:40 PM
Re: perineural invasion
[Re: Cheryld]
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Member
Registered: 01/19/12
Posts: 14
Loc: San Diego, CA
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As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.
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Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male
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#148342 - 04/16/12 12:55 AM
Re: perineural invasion
[Re: Mark B]
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Contributing Member (25+ posts)
Registered: 04/14/12
Posts: 32
Loc: VA, USA
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Thank you for sharing this. Very informative.
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48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
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#148435 - 04/17/12 10:05 PM
Re: perineural invasion
[Re: KenEggman]
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Patient Advocate (1000+ posts)
Registered: 07/12/09
Posts: 1353
Loc: Los Angeles
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A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!
(oh and I remember seeing both the crows talk and the stroke talk - great stuff)
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 7 years all clear in 6/16
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