#145546 - 02/07/12 04:52 PM
perineural invasion
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OCF Founder
Patient Advocate (old timer, 2000 posts)
Registered: 03/18/02
Posts: 4458
Loc: Laguna Niguel, CA
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Those of you who have been around here for awhile know that I am a big fan of TED.com If you are not aware of what it is, do yourself a favor and a couple times a week look at a couple of less than 10 minute videos there, they will inform, enlighten, and change the way you think about things. For new people to TED, a couple of random ones to start with might be these: http://www.ted.com/talks/lang/en/joshua_klein_on_the_intelligence_of_crows.htmlhttp://blog.ted.com/2008/03/12/jill_bolte_tayl/Anyway, an important discovery regarding head and neck cancers, and recognizing a new way of seeing that they are actually there, when conventional imaging doesn't do the job, was on a regional TED seminar. The presentation is not up to TED standards itself, but the information is really game changing, and something that we all need to consider asking for when we have symptoms that we know are dangerous but scans do not find exactly where the problem is. This has to do with the manner in which cancer can travel from location to location, in a way which we are not paying enough attention to - perineural invasion. We all know about circulatory and lymph system spread of the disease, but this is a mechanism that there is now a very simple way to discover… by scanning it differently. http://www.youtube.com/watch?v=xVVDHZr7erk&feature=share
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. "The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant."
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#145547 - 02/07/12 05:04 PM
Re: perineural invasion
[Re: Brian Hill]
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Senior Member (100+ posts)
Registered: 01/26/12
Posts: 107
Loc: br
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Great video... Thanks!
_________________________
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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#145549 - 02/07/12 05:25 PM
Re: perineural invasion
[Re: braziliangirl82]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6704
Loc: PA
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I love TED. They have such interesting videos. I love the diversity of so many different subjects.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#145554 - 02/07/12 06:00 PM
Re: perineural invasion
[Re: ChristineB]
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"Above & Beyond" Member (500+ posts)
Registered: 07/12/07
Posts: 917
Loc: Punta Gorda, Florida
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Wow! Like you say...a game changer.
Deg
_________________________
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
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#145557 - 02/07/12 06:47 PM
Re: perineural invasion
[Re: debandbill]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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Absolutely!!!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145560 - 02/07/12 08:26 PM
Re: perineural invasion
[Re: Cheryld]
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Platinum Member (300+ posts)
Registered: 08/08/11
Posts: 409
Loc: MA
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I wish this forum had a "like" button!
_________________________
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/SND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
treated with 35 rads/7 carbo & taxol
1/22/13 MRI w/ contrast no evidence of disease!
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#145570 - 02/08/12 05:26 AM
Re: perineural invasion
[Re: Kerri]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#145575 - 02/08/12 08:40 AM
Re: perineural invasion
[Re: Cheryld]
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Member
Registered: 01/18/12
Posts: 14
Loc: San Diego, CA
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As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.
_________________________
Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male
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#148342 - 04/15/12 05:55 PM
Re: perineural invasion
[Re: Mark B]
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Contributing Member (25+ posts)
Registered: 04/14/12
Posts: 32
Loc: VA, USA
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Thank you for sharing this. Very informative.
_________________________
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
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#148435 - 04/17/12 03:05 PM
Re: perineural invasion
[Re: KenEggman]
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Patient Advocate (1000+ posts)
Registered: 07/12/09
Posts: 1042
Loc: Los Angeles
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A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!
(oh and I remember seeing both the crows talk and the stroke talk - great stuff)
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 PET-CTs clear through 1/13!
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