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#147377 - 03/20/12 10:54 PM Re: and, the results are back.. [Re: terrib]
Gerri Offline
Supporting Member (50+ posts)

Registered: 08/03/10
Posts: 75
Loc: Nebraska, USA
My heart is breaking for you. It's just not fair. I hate this disease! Be proud of all you did for and with him while he was here, now it's time to focus to taking care of you.
CG to sp age 53
4/10 BOT IVb
6/10 Ttl Gloss Lrngectmy L Mndbltmy 5+ Nodes
7/10 Cispl & Rad
1/11 recur lung mets
2/11 Clin Tr Erb Carb 5FU last 5/11
7/11 Tumor growth began wkly Bleo, Taxol, Carbo
10/28/11 Hospice; Passed 11/7/11

#147383 - 03/21/12 01:46 AM Re: and, the results are back.. [Re: Gerri]
ngk Offline
Gold Member (200+ posts)

Registered: 08/09/11
Posts: 269
Loc: CA
I'm so sorry for your loss, so very sorry. It's been quite the difficult journey.

Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!

#147388 - 03/21/12 08:01 AM Re: and, the results are back.. [Re: ngk]
Sandy177 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/17/11
Posts: 571
Loc: California
Dear Christine,

Matt was blessed to have your love to see him through his journey. You are the most amazing caregiver--all heart and strength and courage.

In the quiet moments when all the company is gone and you are feeling his absence the most, please let beautiful memories of Matt's love for you bring you comfort.

You know the times when cancer was doing the speaking. Don't give those times any power in your life. Remember his smile, his gentle touch, his loving words.

Mourn in your own time. Take your time and don't allow anyone to pressure you into taking any steps for which you aren't ready. Be gentle with yourself. I am sending hugs across the miles.

Keeping you in my thoughts and prayers.
Love you,
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.

#147409 - 03/22/12 05:38 AM Re: and, the results are back.. [Re: Sandy177]
Pandora99 Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Registered: 09/14/06
Posts: 1328
Loc: Winnipeg, Manitoba Canada
I am so very sorry for your loss Christine. There just are no words to adequately express our sorrow at the premature loss of yet another OCF angel. He was so very lucky to have you there for him every step of the way. Be kind to yourself in the coming day. Please stay connected with us. We are here for you.

Donna,61,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 11 yrs from 1st dx, 7 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL!

#147411 - 03/22/12 01:28 PM Re: and, the results are back.. [Re: EricS]
johnswife Offline
Supporting Member (50+ posts)

Registered: 06/16/10
Posts: 58
Loc: Michigan
{{{Hugs}}} to you Christine.



CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.

#147415 - 03/22/12 09:59 PM Re: and, the results are back.. [Re: johnswife]
Karenj Offline
Supporting Member (50+ posts)

Registered: 12/17/10
Posts: 99
Loc: Michigan
My heart is with you. So sorry to read of Matt's passing but relieved as well that both of you will not have to suffer anymore with the unknown journey and all the different kinds of pains this disease brought to him, you and your family. He is at peace, you probably will be lonely and exhausted both physically and emotionally these next months but know you did everything possible for Matt in his final journey, one all of us will take someday. Time marches on and no one can stop it no matter how much we want to. I will be thinking of you in these next weeks and beyond - let us know how you are doing. Love Karen
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.

#147419 - 03/23/12 01:00 AM Re: and, the results are back.. [Re: Karenj]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1301
Loc: Sydney NSW Australia
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#147420 - 03/23/12 01:23 AM Re: and, the results are back.. [Re: Gabe]
ChristineB Online   content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9427
Loc: PA
Thank you Gabe!

Christine, I know this is so difficult for you. My condolences to you and your family. May Matt rest in peace.
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#147424 - 03/23/12 07:40 AM Re: and, the results are back.. [Re: ChristineB]
CMMoore Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 280
Loc: MO, USA
Hey everyone, I am here, I am reading.
I love you all, your words are always a great comfort.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.

#147426 - 03/23/12 12:18 PM Re: and, the results are back.. [Re: CMMoore]
walknlite Offline
Patient Advocate (1000+ posts)

Registered: 05/13/09
Posts: 1405
Loc: Oklahoma
Christine, I am so sorry for your loss. I will be praying for you ans your family during this most difficult time.
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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