#147377 - 03/20/12 03:54 PM
Re: and, the results are back..
[Re: terrib]
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Supporting Member (50+ posts)
Registered: 08/03/10
Posts: 75
Loc: Nebraska, USA
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My heart is breaking for you. It's just not fair. I hate this disease! Be proud of all you did for and with him while he was here, now it's time to focus to taking care of you.
_________________________
CG to sp age 53
4/10 BOT IVb
6/10 Ttl Gloss Lrngectmy L Mndbltmy 5+ Nodes
7/10 Cispl & Rad
1/11 recur lung mets
2/11 Clin Tr Erb Carb 5FU last 5/11
7/11 Tumor growth began wkly Bleo, Taxol, Carbo
10/28/11 Hospice; Passed 11/7/11
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#147383 - 03/20/12 06:46 PM
Re: and, the results are back..
[Re: Gerri]
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Contributing Member (25+ posts)
Registered: 08/08/11
Posts: 32
Loc: CA
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I'm so sorry for your loss, so very sorry. It's been quite the difficult journey.
_________________________
Nancy (53)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, TX no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
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#147388 - 03/21/12 01:01 AM
Re: and, the results are back..
[Re: ngk]
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"Above & Beyond" Member (500+ posts)
Registered: 01/16/11
Posts: 571
Loc: California
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Dear Christine,
Matt was blessed to have your love to see him through his journey. You are the most amazing caregiver--all heart and strength and courage.
In the quiet moments when all the company is gone and you are feeling his absence the most, please let beautiful memories of Matt's love for you bring you comfort.
You know the times when cancer was doing the speaking. Don't give those times any power in your life. Remember his smile, his gentle touch, his loving words.
Mourn in your own time. Take your time and don't allow anyone to pressure you into taking any steps for which you aren't ready. Be gentle with yourself. I am sending hugs across the miles.
Keeping you in my thoughts and prayers.
Love you,
Sandy
xoxox
_________________________
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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#147409 - 03/21/12 10:38 PM
Re: and, the results are back..
[Re: Sandy177]
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"OCF Canuck"
Patient Advocate (1000+ posts)
Registered: 09/14/06
Posts: 1268
Loc: Winnipeg, Manitoba Canada
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I am so very sorry for your loss Christine. There just are no words to adequately express our sorrow at the premature loss of yet another OCF angel. He was so very lucky to have you there for him every step of the way. Be kind to yourself in the coming day. Please stay connected with us. We are here for you.
Donna
_________________________
Donna,59,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 9 yrs from 1st dx,5 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian-YES,UNIVERSAL HEALTH CARE IS WONDERFUL!
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#147411 - 03/22/12 06:28 AM
Re: and, the results are back..
[Re: EricS]
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Supporting Member (50+ posts)
Registered: 06/16/10
Posts: 57
Loc: Michigan
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{{{Hugs}}} to you Christine.
Peace.
_________________________
Bonnie
CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.
Lost the battle, but walking in Glory 9/7/11.
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#147415 - 03/22/12 02:59 PM
Re: and, the results are back..
[Re: johnswife]
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Supporting Member (50+ posts)
Registered: 12/16/10
Posts: 98
Loc: Michigan
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My heart is with you. So sorry to read of Matt's passing but relieved as well that both of you will not have to suffer anymore with the unknown journey and all the different kinds of pains this disease brought to him, you and your family. He is at peace, you probably will be lonely and exhausted both physically and emotionally these next months but know you did everything possible for Matt in his final journey, one all of us will take someday. Time marches on and no one can stop it no matter how much we want to. I will be thinking of you in these next weeks and beyond - let us know how you are doing. Love Karen
_________________________
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear 12/11-Peg out/Platlet issue
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#147419 - 03/22/12 06:00 PM
Re: and, the results are back..
[Re: Karenj]
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"OCF Down Under"
Patient Advocate (1000+ posts)
Registered: 08/02/07
Posts: 1189
Loc: Sydney NSW Australia
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I have checked with Christine and she is happy to have me post the link to Matt’s Guest Book for here. A Celebration of Life will be held Friday, March 23, 2012 at 10:00 AM in Walnut Lawn Funeral Home. I know a lot of our OCF family would like to add a message.. http://walnutlawnfuneralhome.com/sitemaker/sites/WALNUT1/obit.cgi?user=596548MooreGabriele
_________________________
Leukoplakia bx dx 8/2006 SCC floor of mouth/tongue T3N0M0- Verrucous Carcinoma.
14 hour 0p-right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
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#147420 - 03/22/12 06:23 PM
Re: and, the results are back..
[Re: Gabe]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6717
Loc: PA
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Thank you Gabe!
Christine, I know this is so difficult for you. My condolences to you and your family. May Matt rest in peace.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#147424 - 03/23/12 12:40 AM
Re: and, the results are back..
[Re: ChristineB]
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Gold Member (200+ posts)
Registered: 07/01/09
Posts: 280
Loc: MO, USA
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Hey everyone, I am here, I am reading.
I love you all, your words are always a great comfort.
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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#147426 - 03/23/12 05:18 AM
Re: and, the results are back..
[Re: CMMoore]
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Patient Advocate (1000+ posts)
Registered: 05/12/09
Posts: 1376
Loc: Oklahoma
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Christine, I am so sorry for your loss. I will be praying for you ans your family during this most difficult time.
_________________________
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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