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Joined: Nov 2006
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Thanks for update, Christine. You have been doing so much. I hope you take a few of those moments to conserve your own energy and take care of your health. Hope everything goes well today with Matt's Rad appointment.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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"Above & Beyond" Member (500+ posts)
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Hi, Christine
I am glad to hear that you and Daisy were able to enjoy the moon. Will be thinking about you and your family.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Dec 2010
Posts: 99
Supporting Member (50+ posts)
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Posts: 99
I think of you and your family every day. Hope you feel a blanket of love from this OC family when the day feels overwhelming and upsetting. Your posts and the responses sent back to you by the caring people here have given me strength and insight for the future as they have addressed things I have been struggling with also. Thank you for honestly sharing your journey. Karen


CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
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Posts: 280
CMMoore Offline OP
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So, the MRI results... NO mets to the brain! Thank you God!
However, we are back to wondering why oh why is he SO confused...
I am going to guess that it's a nutritional imbalance.
He's not taking much in the way of pain meds anymore so I can't believe it could be narcotics.
Someone at the clinic suggested perhaps an electrolyte imbalance?
I will discuss this with the hospice nurse tomorrow.

Too tired for much more than that tonight. Goodnight all.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
Joined: Oct 2011
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Praying Christine. Hope your ears feel better soon.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Posts: 280
CMMoore Offline OP
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Thanks Kathy. They still hurt. The right ear seems to be getting better, but the left ear is almost swollen closed. I could definitely use prayers for swift healing!



CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
Joined: Jul 2011
Posts: 945
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Christine - I'm sure they've checked his blood sugar level but just thought I'd ask - maybe a diabeties issue? That can also cause confusion (sure did with my mom.
Healing thoughts for your poor ears.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Oct 2011
Posts: 805
KP5 Offline
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Awesome on the MRI results. Hopefully now they will try to figure out the confusion. What does his doc say about it?


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
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Posts: 531
Hey Christine just read all the posts since the 21st of Feb, I've been gone that long? I've been so busy at work and I have 2 kids moving to new apt and new home since end of Feb and 1st of this month so I've been crazy! YOU ARE DOING AWESOME!! Don't ever doubt yourself, hell I'm so tired from working all day and Ron is doing fine so I don't have to take care of him so much even though he still eats like a bird and is still very thin. But I am going to try and keep up with you. Last I read on FB from you, you were thinking bout getting the Mini Pin I don't know if I missed your postings or what cuz I'm hardly on there too, work has burnt me out of computers by the time I get home I don't want to sit on one again!
You need to send me a pic of the lil girl.
Hope all is well and thank God it's not to the brain.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jul 2009
Posts: 280
CMMoore Offline OP
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I am having a SERIOUSLY down night. I had a great day. I got out of the house, made a new friend, went to the mall, bought my step-daughter a b-day present, signed up with a gym, enjoyed my day.
I came home to the usual situation, linens soiled, husband confused, waiting on hospice aide to come give him a shower.
I put him in his chair so I could start changing the bed and the aide came in, helped me (shocker... she was the first one to offer to help ME)... then she took a verbal beating while trying to figure out if Matt did or did not want a darn shower. He ended up getting a quick wash over while sitting up as he was not cooperating.
The aide left me with some absorbant pads to put under him. OF course the first time he needs to urinate, he pulls the pad out from under him, and THEN goes on the bed and floor.
I just throw up my hands for the night. I don't have anymore clean sheets for the darn bed. I cannot get him to use the depends nor the pads they provided. He wont use his oxygen, he argues taking meds...

And for the last hour or so, I have been sobbing non stop over how much i MISS MY HUSBAND. This lovely day I had, and I didn't have anyone to talk it over with. I want to play cards again at bedtime. I want to argue over what movie we are going to watch.
I AM SO LONELY.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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