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Just been talking (texting) with Nate and he wanted me to give everyone an update. He's doing really well and sounded in fantastic spirits. He emailed me a copy of the attending surgeons report of his procedure and it is very optimistic with nothing but negative paths. He thanks everyone for all of the love and support, it means so much to him.

Let's keep him in our hearts as he get's ready for his next round of radiation!

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Thanks, Eric: I saw him on Facebook and he is really looking good - what a terrific attitude that guy has - amazing. Keep us informed and I pray for the very best for him.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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So glad to hear the great news! Thanks for update, Eric.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Great news on the negative paths! Yep he posted a pic and he looks really good considering all that he's been thru, quite the fighter he is and that's a good thing!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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That's so great!!! Hopefully he'll sal through rads!!!! wink give him a text hug for me!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Eric, I was texting with Nate yesterday too. Its great that the margins were clean! Nate is trying to adapt to all the changes. He really has alot going on right now. Its going to be a very long road for him with his radiation and continuing recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Christine, can you keep up with him on text? My lord, I swear that guy has like lightning fingers or something, I don't know how he does it as I certainly can't text that fast!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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He sounds like my daughter she uses that slide touch where you just glide your fingers accross the phone to the letters and it prints out what you are saying, no clue how that works. I use T9 on mine.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jun 2007
Posts: 10,507
Likes: 6
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@ Eric... Nate is like lightening! Heck NO I cant keep up with his texting. I think he must have one of those 3 or 4 G phones with the full keyboard. He writes a paragraph and my phone gets 3 or 4 texts at a time on its tiny little screen. Everytime Im in the middle of typing a reply, BOOM here comes another one and it kicks me out of my text. Makes me even slower then. Nate is the younger generation who has grown up having a cell phone from the time he was like 10 years old. I got my first cell phone when I was 35, makes for quite a big learning curve!

Back to the original topic. Nate is doing very very well considering everything he has gone thru. His surgery was very drastic and his life will now be forever changed. I cant imagine what he must be going thru learning to live his life without a voice, not even a whisper. Nate will need our support weather he feels like he does now or not. I speak from my experience in a similar situation. I woke up 3 week after I went in for the mandibulectomy terribly disfigured and all pieced together. I had no idea what had happened, I went to sleep on August 24th and woke up September 13th. It felt like I had taken a short nap. It took me quite a while to mentally process what had happened while I was kept asleep. Adjusting to such a sudden dramatic change is not easy to adapt to. It really took alot of deep thinking before I was able to pick myself up, brush the dust off and walk out the door with my head held high. I hope I am able to help Nate work thru this point in his life. He still has 5 weeks of rads to do before he can begin to put this all behind him and move on.

If anyone would like to send Nate a card, please PM me for his address.

Last edited by ChristineB; 01-23-2012 06:44 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: May 2009
Posts: 1,412
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Posts: 1,412
Thanks for the update Christine. He does have a long road ahead of him. I will be praying for him and is continues recovery.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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