| | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | And yes it is the same cancer, it had met but he had "negative margins" and he may or may not need chemo. Doc said he took a "wedge" out no clue how big but it showed 1.2 cm for the spot so I don't know everything. This surgery was not even 1 hour wow that is great cuz we are having bad weather here in Cleveland and I'm gonna get my butt home before rush hour crazy drivers and I'm really tired from being up @ 3am. He is going into ICU now and has one chest tube, getting him comfortable now I can go up in an hour to see him. Am I really shocked about it being cancer again? Sadly No.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, Suez
glad the surgery is done but so sorry it is cancer again. Take care on the drive home.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Sue:
Sorry to hear about Ron's recurrence, but pray he will be okay. Also, prayers headed your way because I know how tired and worried you must be. Hope you can rest now and Ron will start recovering. Love and hugs from julieann in Alabama.
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sue, I am very sorry to hear Rons surgery showed he had cancer again. He has been thru so much already. I was hoping and praying he would get a break this time around. Prayers he will make a full recovery with no further treatments necessary.
Stay safe with your traveling in the snow.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Hi Sue,
This damned disease. I am sorry to hear that it was positive for OC. But, glad to hear the margins were negative. I'm glad the surgery was quick. I'll be keeping you and Ron in my thoughts and prayers.
Sending a hug.
Sandy
xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Sending Hugs and Love Sue, tell Ron to keep his chin up, we are pulling for you guys!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Hell people he is already in Stepdown by 3pm today they are all amazed how well he is doing, he was sitting up and ate soup and mashed potatoes and coffee @ 7pm and was all bright eyed and bushy tail they were even saying if he does well tonight and tomorrow he may just go home tomorrow...simply amazing the little skin and bones he is...simply amazing strong willed man, if only he can friggin kick that bad habit...only he can make that decision, you think by now he would have...simply amazing...but it still pisses me off to no end. Thanks everyone, what exactly does Negative Margins mean? I know doc said it's a good thing what is dif of neg and clear? are they the same? I was too tired to think of asking when doc came in to see him in ICU...did I say his doc is friggin cute??? hahaha! But really he is! Great bedside manners too. Glad he is so positive. I told him this surgery was a piece of cake for Ron he said nobody ever said his surgeries were like that I said after his 2 for his oral cancer ya this was easy. 1 hour sugery to 7-12 hours ya piece of cake even though he took a "wedge" of his lung out. Simply amazing.
It's time for me to take this vacation day to bed, my bed partner(my pitty poo) is whining she's ready for bed too she had a rough day alone without Ron home I think. Night my OC Family I Love you all and wish I can hug each one of you.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Sue,
It all sounds positive, even though it's still cancer. Strange to say, I know. I believe that negative margins and clear margins are the same. That just means that they got the entire tumour with some healthy tissue around the border so as not to leave any malignant cells behind. That might be a good indicator that he may not need additional treatment. Let's hope this is it for him and you can both move foward to new normal. Hugs to you. Rest well, my friend!
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Great the got clear margins!!!! He real
Ly needs to give up smoking though! Too bad it was a recurrence!!! But hopefully he clear margins will do it for him and he won need anymore treatment!. Take care!
Last edited by Cheryld; 01-13-2012 07:21 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Great to hear about the clear/negative margins. Sending positive thoughts your way.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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