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#144428 01-02-2012 03:07 PM
Joined: Sep 2011
Posts: 9
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Joined: Sep 2011
Posts: 9
hi, have a question too ask.
i saw my oncologist the other day.i have had tonsilitis 3 times since sept.this last time it took almost 3 bottels of meds to get the infection out.the dr said my right tonsil was very large.
he said if i get this again i would need to see and ent.i did say isnt that you.he said only on the cancer side and he would give me some names of drs.said ok...
anyway about 4 hours later the dr call me and said he had have second thoughts about me ....said he went back over the biopsys i had in sept and didn't like the way my tonsil looked so he would like to take them out.

why would he have second thoughts?
will this be very painfull?
you think maybe he thinks i have cancer in my tonsil?
ever hear of dr calling back and say he had second thoughts?
now i'm scared.


having a direct laryngoscopy & biopsy and ct scan....9-18-11
dr might take my thyroid out.
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Hi, Mark
It sounds to me like you have an honest doctor. A diagnosis is not always black and white, even on the cytology level. My guess (and this is a guess, I am not a doctor) is that your tonsil did not do what he expected it to, and he is going on the side of better safe than sorry.

My thought is that you should discuss your situation with doctor carefully. Write down all your questions, and leave room for the answers. Next, it wouldn't hurt to seek a second opinion - especially if the terms 'tumor board', CCC or team DON'T come up in the conversation.

Having your tonsils out will slow you down for a bit (especially no heavy lifting awhile), and will make it painful to swallow, but they will give you medications to manage the pain.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #144459 01-03-2012 09:08 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
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Hi - I agree, glad your dr. Called you back. He may just be being thorough and if something seems to be a chronic issue - perhaps the way to solve the problem permanently is removing it, I've had my tonsils out as a child - it wasn't too bad as an adult it may be a little worse, but I think you'll be fine. Good luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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