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#144436 - 01/03/12 12:02 AM Medical marijuana  
Joined: Dec 2011
Posts: 60
lam007 Offline
"OCF Down Under"
lam007  Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Dec 2011
Posts: 60
NSW Australia
Because medical marijuana isn't legal here I'm just asking hypothetical questions. Does it help? How does it help (pain, appetite, nausea)? What did your doctors have to say about it (open or closed to the idea)? How did you partake? Any concerns about vaporizing vs. ingesting?

We are coming up on week 3 and the roughest part is looming ahead.


CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.
#144440 - 01/03/12 01:01 AM Re: Medical marijuana [Re: lam007]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
My personal opinion is that MJ is very helpful.
Take a look at this thread on OCF: OCF posts
Smoking is a definite no no. Vaporizing was covered in this study Norml - Volcano study
Yeah, being illegal sucks. Hypothetically, I know a "friend" who has used the Volcano since diagnosis and it has let "him" conquer nausea, have an appetite, and drastically reduce prescription opiate drugs. But since it's illegal, direct open advocacy is not a viable option. But as I have posted before, each and every State that has instituted medical marijuana acknowledges its efficacy for cancer patients. The Federal government has had to overturn its administrative law judges findings and ignore every Presidential fact finding committee's recommendations to simply insist that although the DEA will not allow any studies, the lack of such studies proves their delusion. Catch 22.
Doctors are as blind as blind can be on this issue, either drinking the DEA Kool-Aid, or pushing bogus substitutes like Marinol. It's Don't Ask, Don't Tell here in the USA.
Ingestion is also a good alternative.
Keep the Faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#144441 - 01/03/12 01:27 AM Re: Medical marijuana [Re: Charm2017]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
If you don't want to spend the coin on the Volcano the Vtower is a less expensive alternative. Ingestion I'm not a fan of but have had a friend who swore by it like a time release method. Vaporizing allows more control . Appetite, mood, outlook, nausea, pain , sleep are benefits experienced by "some" . I'm an advocate of its use and hope that someday our federal government eases up on its use.

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#144443 - 01/03/12 01:32 AM Re: Medical marijuana [Re: EricS]  
Joined: Dec 2011
Posts: 60
lam007 Offline
"OCF Down Under"
lam007  Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Dec 2011
Posts: 60
NSW Australia
Thank you Eric and Charm. Anyone else out there with an opinion who is reluctant to share pubically, for or against, please PM me. Charm -- the thread you link to is the one that inspired the new post. I just didn't want to hijack it. Thanks guys.


CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.
#144450 - 01/03/12 11:23 AM Re: Medical marijuana [Re: lam007]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
I'm so glad we have Charm and Eric to share their personal experiences and thoughts on Medical MJ. If I had known about the the benefits of Medical MJ when my son was going through the worst of his Rad Tx, and seeing how he was suffering with all the symptoms mentioned above, I would have done ANYTHING to find him some relief! My feeling is that "whatever works, DO it!"


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#144456 - 01/03/12 03:12 PM Re: Medical marijuana [Re: Anne-Marie]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Ron eats like crazy when he does partake in it. Wish he would do it more often really.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#144507 - 01/04/12 06:32 PM Re: Medical marijuana [Re: SUEZ]  
Joined: Jul 2009
Posts: 1,369
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,369
Los Angeles
I'll add to the yes vote. Although I didn't use it much, and it is legal here so nothing was stopping me, it's surely helpful for appetite issues. Can't speak to its nausea-abating properties.

I also know that some people here have had bad/ineffectual experiences with the synthetic version, which in the States is called Marinol. My RO prescribed it for me and I found it helpful, so if that's an avenue for you to pursue you might think about it.

As far as vaporizing vs. eating.... never tried the former but the latter seemed effective to me. Just don't smoke the stuff!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17
#145659 - 02/10/12 06:58 PM Re: Medical marijuana [Re: David2]  
Joined: Jul 2009
Posts: 280
CMMoore Offline
Gold Member (200+ posts)
CMMoore  Offline
Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
MO, USA
Very helpful for nausea, appetite, anxiety, sleeplessness, comfort, all around benefit to the patient!!!!
Wish it were legalized all over.
Vaproizer has no real smell (so i hear)


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
#148847 - 04/29/12 06:32 PM Re: Medical marijuana [Re: CMMoore]  
Joined: Feb 2012
Posts: 38
seattlepaul Offline
Contributing Member (25+ posts)
seattlepaul  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
Washington
Never used Medical Marijuana, just recreational MJ, & THC (active ingredient), which does increase appetite, sense of well-being, relaxes mind & body, but smoking is as harmful as tobacco.
Effects diminish over use, so always have to increase dosage.
Ingestion is slower, more relaxed, never heard of study of benifit: need to pressure govt. to do so, but Right Wing will resist mightily.



69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
#148865 - 04/29/12 11:55 PM Re: Medical marijuana [Re: seattlepaul]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
Paul

Great humor in this post two days before surgery ( yeah, that non medical marijuana - so different from medical). Seriously,.
Sorry to hear about a third time but trite as it sounds (and perhaps even annoying as I found it then -not so much now)
the fighting spirit you show in today's posts bodes well.
Oh, and after you beat the cancer again, then of course you would never smoke MJ, just vaporize it or continue your ingestion.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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