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#146409 - 02/26/12 02:45 AM Re: Its back!!!! [Re: mick]  
Joined: Jun 2007
Posts: 9,715
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,715
PA
It is a big surgery. Its not an easy one. But it can be done. When they take you back for surgery, then next thing you know is waking up in your room. In time the whole thing will be just a blur. I wish you all the best with this!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#146412 - 02/26/12 05:37 AM Re: Its back!!!! [Re: ChristineB]  
Joined: Aug 2011
Posts: 593
Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 593
MA
Best of luck with your surgery on Monday. I'm so sorry that you have to go through this. None of us should have to suffer like this. The good news is that there is a good prognosis for a cure. Look at all that Christine has endured and her signature amazes me every time..."very happy to be alive". Draw on her strength and others than have gone before you.

I hope that you have the best possible outcome and that your recovery is smooth sailing! You will be in my thoughts on Monday and the days following. Please keep us posted with your progress as you are able.

Your friend in OCF,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
42 years old now...I wasn't sure I would make it! Hoping for 40 more!
#146415 - 02/26/12 06:32 AM Re: Its back!!!! [Re: Kerri]  
Joined: Jun 2009
Posts: 875
julieann Offline
"Above & Beyond" Member (500+ posts)
julieann  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
Alabama
Just wanted to tell you I will say a prayer for you for Monday's surgery and pray that will be the end of your surgeries - NO MORE recurrances, EVER. Good luck, and let us hear from you when you can to let us know how everything went.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
#146424 - 02/26/12 03:19 PM Re: Its back!!!! [Re: julieann]  
Joined: Sep 2009
Posts: 697
AnitaFrances Offline
"Above & Beyond" Member (500+ posts)
AnitaFrances  Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 697
Media, PA
Best wishes as you prepare for your surgery tomorrow. My husband had a mandibulectomy, too. That was over 3 years ago and he is doing great. Your team sounds like they have everything covered especially pain relief. You are in good hands and have OCF friends supporting you.


Anita (63)
CG to husband, Clark, 73,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
#146429 - 02/26/12 04:29 PM Re: Its back!!!! [Re: mick]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Good luck, will definitely say a prayer all goes well!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#147050 - 03/12/12 12:14 AM Re: Its back!!!! [Re: Cheryld]  
Joined: Nov 2010
Posts: 74
plantgirl Offline
Supporting Member (50+ posts)
plantgirl  Offline
Supporting Member (50+ posts)

Joined: Nov 2010
Posts: 74
North Carolina
Thanks for all he wellwishers. I came home Tuesday night...they.did take the tracheotomy Tube out but I haves e my feeding tube still in. My face is so swollen,I resemble the elephant man and I have a huge hematoma on my right leg where they took tissue for my mouth. Ive been doing pretty good moving around but I get so tired,all I want to do is sleep. Any suggestions for the lump on my leg? Cold or warm compresses or do nothing? Still hurting like hell but it gets a little easier every day.



4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
#147051 - 03/12/12 01:40 AM Re: Its back!!!! [Re: plantgirl]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Congrats in getting though it your strong as heck! I wish I had advice for the leg but I'm sure someone will be along... Good luck! Hugs and heal well.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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