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#144035 - 12/17/11 06:25 PM Its back!!!!
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
After 2 months of complaining of pain and increasing trismus, my Drs finally ordered a CT scan and found a spot behind my left jawbone. I had biopsy and sure enough the cancers back. Saw my ENT Dr last week and they have decided that my treatment will be Chemo followed by surgery in which he will remove my jawbone and while Im on the operating table they will give me a blast of radiation to that area. He assured me that this is completely cureable but its extreme to say the least. Im going to do it because at this point the pain is killing me, I cant eat or sleep and the pain meds theyve given me havent touched it.Ill be seeing my Chemo Dr , Radiation Dr and a Pain management Dr on Monday so I will let you all know what happens then.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

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#144039 - 12/17/11 11:11 PM Re: Its back!!!! [Re: plantgirl]
Karen Rose Offline
"OCF Down Under"
Platinum Member (300+ posts)

Registered: 03/13/08
Posts: 395
Loc: Melbourne, Australia
plantgirl,

Sorry to hear the cancer is back. After you meet the Pain Management Doctor Monday, and have the pain under control, I would recommend a second opinion. Pain clouds good decision making. A second opinion is a must!


Karen


Edited by Karen Rose (12/18/11 12:50 AM)
Edit Reason: typo
_________________________
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandiblectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery

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#144044 - 12/18/11 02:37 AM Re: Its back!!!! [Re: Karen Rose]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8472
Loc: PA
Sorry to hear you will have to go thru so much with your recurrence. I have also had my lower jaw removed. Its not easy but it can be done. Please let me know if there is anything I can help you with regarding this type of surgery.

Best wishes!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#144052 - 12/18/11 06:38 AM Re: Its back!!!! [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4963
Loc: Toronto canada
Sorry it's back but thankfully you caught it quickly and as they said its curable!!! Good luck...
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#144121 - 12/20/11 10:50 PM Re: Its back!!!! [Re: Cheryld]
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
I saw my Chemo Dr Monday and she explained to me that they would start the Chemo 1st week in January and the surgery would depend on how my cancer responds to the Chemo.Hopefully the cancer will stay in one place. Also saw my Rad Doc and he went over the plan to radiate me at the surgery site. Also saw the Pain management team and they are very helpful getting me the right pain meds to alleviate some of this pain. All in all it was a very informative day and they all were very patient with me and all my questions. It helps so much when you have complete faith in your Drs as I do.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

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#144918 - 01/22/12 04:30 PM Re: Its back!!!! [Re: plantgirl]
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
They have finally given me my surgery date. Its going to be Feb 27th.I was really hoping it was going to be sooner, this waiting is driving me crazy!! I'm still have 3 more Chemos to do.Cant wait for that to be done with.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

Top
#144924 - 01/22/12 09:36 PM Re: Its back!!!! [Re: plantgirl]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8472
Loc: PA
Wishing you all the best with your surgery. I know having a mandibulectomy is not an easy surgery. It has a long recovery period. Please let me know if I can answer any questions about a mandibulectomy. Wishing you all the best with everything you are going thru.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#146398 - 02/25/12 08:34 PM Re: Its back!!!! [Re: ChristineB]
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
I will be going in for my surgery on Monday. Part of me is scared too death as my Dr has told me this is going to be at least a 10 hour surgery. He also said I will be in the hospital for about 10 days. Hopefully this will be it.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

Top
#146399 - 02/25/12 09:05 PM Re: Its back!!!! [Re: plantgirl]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
We will be pulling for you on Monday! It sounds like your team is on the ball with the combination therapy. It's a big surgery but you are a strong woman. Best wishes and prayers.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#146408 - 02/26/12 01:35 AM Re: Its back!!!! [Re: plantgirl]
mick Offline
Contributing Member (25+ posts)

Registered: 02/16/12
Posts: 26
Loc: boston,ma
you won't remember the surgery, and there will be no pain because they have come a long way in pain management. my last surgery was 12 hours and it is what it is. hang in there, better days ahead
_________________________
after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember

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