Previous Thread
Next Thread
Print Thread
Page 9 of 14 1 2 7 8 9 10 11 13 14
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
I can add another if I didn't already but now I get from Walmart their Ham Salad it is chopped up pretty small and he just adds more Miracle Whip to it, ya he's not a Mayo person. lol


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Oct 2011
Posts: 4
Member
Offline
Member

Joined: Oct 2011
Posts: 4
I survived on scrambled eggs cooked with goat cheese so they were more runny. For a while I tolerated apple sauce, mashed potatoes with no salt or pepper.

The truth it, what I could eat changed almost daily and so we just kept a bunch of stuff on hand.

Best wishes.


Swollen node, Diagnosed 04/05/10. Stage IV BOT SQCCA, 1 Lymph Node, Radiation and Erbitux, 5 weeks of Ethyol to protect Salivary Glands,no PEG. 10/20/10 PET clear.

I want to make sure other people know about this disease and HPV.
B Ellis #143726 12-07-2011 08:50 PM
Joined: Apr 2011
Posts: 267
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2011
Posts: 267
My friend came over last night and made me a shake containing one avocado, one can sweetened condensed milk, half a cup of vanilla ice-cream and a little regular milk. it had a really mild flavor, was easy to drink and had lost of calories and protein. Those amounts made an entire pitcher so I've been drinking it all day. Made a nice change from the canned supplements.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
msmac #143744 12-08-2011 02:40 PM
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
I found yet another thing that Ron is getting down quite well and is exclaiming how good it is every time he eats it AND he has eaten the whole large crockpot that I made, I took to lunch 1 time this week the rest he has eaten and I froze a container for later in the winter.
Stuffed Pepper Soup! He puts it over 2 pcs of BUTTERED white bread with crust removed and he sucks that right down! Wahoo!
he told me "make sure you eat it with bread" when I took some for lunch.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Dec 2007
Posts: 138
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Dec 2007
Posts: 138
I am 4.5 years out now. Learning which foods I can no longer eat was easy....like POPCORN, for example. Learning the new mechanics of how to eat the foods I can has taken some time, but now I'm almost a "pro" at it. I'm into trying things again that I could not eat a year ago and thinking up simple new recipes that are quick and nourishing since I am on the go a lot. I just wanted to share a delicious little recipe for a hot breakfast that I concocted this week. If you like oatmeal, bananas and raisins then you should LOVE this! Bananas are not a problem but I cannot eat raisins by themselves for risk of getting them hung up in my throat. However, I was determined to find a way to eat them and still enjoy them! I open one packet of instant brown sugar and maple oatmeal into a bowl then add water just to the top of the oatmeal. That much water is usually sufficient so the oatmeal won't be too thick, but you can add a little more after it is cooked if you like the oatmeal thinner. (You can use plain oatmeal or any other flavor you like) Microwave on high for 40 secs. Slice up a whole banana and add to the cooked oatmeal then sprinkle with a handful of yogurt raisins or plain raisins, whichever you prefer. DELICIOUS, and very filling! Good for you too! Enjoy! Happy New Year to everyone!

Last edited by x28007; 12-31-2011 09:57 AM.

Nine years out. New normal with limitations, but surviving and living life to the fullest.
x28007 #144394 12-31-2011 11:19 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
That is delicious! I like the Instant Peach Oatmeal, cut up dried prunes and add handful of cranraisins. Add just a little more water or milk than recommended on package. I like it with bananas, too. Serve with a little 1/2 and 1/2 after it's cooked.

BTW - Did you know that the Gourmet Jelly Beans (Jelly Bellies?) make a popcorn flavored jelly bean? For anyone having to be off the popcorn but still craving the taste.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
If Im very careful, I can break up pieces of popcorn and manage to get a few pieces down. I used to LOVE jelly beans, how I wish I could eat those among other things.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2009
Posts: 493
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 493
Went out to a restaurant in a nearby town called Mon Ami yesterday afternoon. Had a wonderful bowl of lobster bisque with a puff pastry crust, and creme brulee for dessert. I almost didn't even miss having a glass of wine. Always order creme brulee if it is available or flan when I am at a Mexican restaurant.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Joined: Jul 2009
Posts: 38
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Jul 2009
Posts: 38
With over 2 years post tx, multiple dialations without improvement I've grown strangely fond of what I call the "picnic side dish" diet: baked beans, macaroni salad, and cole slaw. The slaw can be a bit catchy so I mix all three together in the bowl.


Mark
BOT Squamous cell, stage IIIa
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
Saurkraut is another that Ron is able to get down with some mashed potatoes and mixes that all up with some juice from say pork roast or kelibasa! And the prime rib I made New Years day I took the fat and some really soft meat and cut that up for him very fine and he was able to get that down too and enjoy it!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Page 9 of 14 1 2 7 8 9 10 11 13 14

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5