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Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
My MO and RO stated that people not completing their treatment protocol have poor survival rates.

Others have posted great suggestions on how to get through it. I took anti-anxiety meds all through out Tx and that helped immensely - I slept through many of my treatments.

You have to soldier on if you want to survive this.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Joan

You asked [quote]Am I just being a baby about all this, be honest[/quote] I don't sugar coat it but the answer is NO.
However, what you will be if you quit getting radiation TX is a suicide victim. Harsh words, yes, but you will be killing yourself if you stop now.
We of all people know just how hard radiation is and there were times when I wished I would die of a heart attack in my sleep because the pain was so bad, but in the end, life is worth it.
keep the Faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Joan - I am so glad you decided to continue with your treatments. I know everyone who has been where you are knows and understands what you are going through. Please stay with us and check back here often - many times every day if you need to. When my son was going through the worst of his Rad TX, this wonderful place is what helped both of us to find the courage, information and help he needed to survive and become cancer free! Do let us know what is happening with you.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Apr 2008
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Joined: Apr 2008
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Hi Joan. I'll keep it brief.

With my treatment, I was wearing a head restraint that was attached to a table. I had my own fears, which I won't list.

For pain, I asked them to impove the pain control. It is important to stay ahead of this. Don't try to be tough. Get the pain control you need.

For fear, one thing that helped is they played music for me during the treatment. I focused on the music. I actually held onto the the music as a source of comfort.

I had a feeding tube through the wall of my stomach, so eating was not a problem.

This is the kind of skin cream they had me use on the areas that were being hit with radiation. http://uddercream.com/

I also used a very gentle soap to wash. I don't remember which one it was.


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Nov 2011
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joanb99 Offline OP
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Joined: Nov 2011
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Once again I will thank all of you that responded, I truly appreciate your help. Udder cream, going on the hunt right after I get back from treatment today smile


Joan Basilicata
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