| | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | how quickly the folder you post in can change. waiting on a biopsy to confirm suspected metastasis, and hoping it's wrong.
and here's a treat, this morning i got a message that someone who cares about my dad wants to visit, and today. they didn't visit before he got sick and get along fine at events where they see each other. i had to explain why that visit right now might upset him as he just learned about metastasis and a random visit now might scare him...it would (and does) me! thoughts? am i being too overly protective?
Last edited by Caco; 11-22-2011 06:42 AM. Reason: can't spell when I'm p*ssed
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | If it was me I would want visitors it's up to your Dad whether he wants visitors or not. I wouldn't make that decision for him, ask him if he wants to see this person.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes ask.. I guess it's the why that is concerning... Try not to be too stressed, you need some time for you... Just to get away for a few hours it may make you less feel. Little better! Hugs and fingers crossed for your dad! Prayers said too! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | Cheryl, you nailed it, it is the "why" and i know the big guy so well i can feel what he'd think. you're right, need to let this settle and work through the plan as this is all too new and raw. can't deal right now. thanks)))))
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi Caco, bad to hear about your dad's suspected mets.
Unfortunately, it is almost similar to my dad as well. His tongue sore refuses to go, he has a bulge and continues to have pain around his right jaw and under right ear.
I was at hospital last weekend, RO have given him some serious pain killers and something to reduce the swelling. I am just waiting for 13th Dec when he'll have PET/MRI. RO has refused to do biopsy before end of three months so pretty much wait and watch!
My dad is low due to the suspected mets, so I can probably understand your dad's situation as well. Take care of your dad and ask him if he wants to meet and greet people.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
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