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#143099 11-19-2011 12:34 PM
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I have been treated successfully at the North Coast Cancer Care Center in Sandusky, Ohio. I have been quite happy with the care I have received at North Coast both from the doctors and the support staff at the center. They are not a hospital, but an outpatient clinic, but the doctors are wonderful. My RO was trained at MD Anderson. This week the Cleveland Clinic acquired North Coast, keeping the doctors and staff intact. I wondered if anyone here has had experience with mergers of this kind or specifically with the Cleveland Clinic.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #143100 11-19-2011 02:41 PM
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According to USNews, the Cleveland Clinic is one of the top hospitals in the country.


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
Leslie B #143101 11-19-2011 03:02 PM
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I know that, I do think that this is probably a good move, but I am just so comfortable with the "family" atmosphere at North Coast, so I am hoping that won't change. I have an appointment for a follow-up visit next week, so hopefully that will reassure me.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #143215 11-22-2011 03:24 PM
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Went to North Coast today. My RO assured me that things would not change. The doctors, etc. will be the same.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #143223 11-22-2011 08:20 PM
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Yeah!!! Hugs - and many blessings to you!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #143247 11-23-2011 01:29 PM
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Cleveland Clinic is where has been treated and I love it and so does he


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
zengalib #144628 01-09-2012 07:44 PM
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I have been treated by Cleveland Clinic, Dr. Addelstein MO, Dr. Saxton RO (retired now) and dr Scharpf my head and neck surgeon, they are FANTASTIC and the care from all of the staff was super...I have to believe that this will be the case in sandusky also (oh BTW I live in Lorain)


51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....
Pookie #144638 01-10-2012 08:49 AM
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Thanks, fellow Buckeyes! I have had a couple of visits to North Coast since the change, and everything seemed to be the same. My one oncologist also said that the merger would give the doctors at N. Coast another source for extra help if needed. Also saw my ENT in December, and he thought it would be fine, too. Actually, my husband went for a biopsy (benign, thank goodness) at Cleveland Clinic a couple of years ago, and was really well treated.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #144640 01-10-2012 02:04 PM
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Pookie(that was my son's nickname his Godfather gave him lol)but Ron also had Dr Saxton for RO. Ron's ENT/Octolar...ist is Dr Burkey and reconstruction Dr Alam. Now he has Dr. Raymond for his biopsy surgery this Friday he's a new one. Dr Burkey I think is a wonderful, caring, great bedside manner Dr. You got a question, he stops and he answers you. I think he's been great for Ron and me too!
Don't fret any zen it will be a good move.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed

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