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#142698 11-09-2011 09:01 AM
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Hi Everyone
My name is Shannon, I am 34, married with 4 kids, from Canada. I was just diagnosed with cancer on my vocal cords 6 days ago, so all of this is still really new and sinking in for me. I am hungry for knowledge right now- kind of sucks waiting in limbo for the treatments to start- i just want to DO something. Right now I am waiting for a CT scan to determine exactly how much cancer, if its spread etc I guess. After that I meet with my team of docs and find out what lies ahead.
Anyway, just wanted to say hello. I hate that there is a need for a forum like this, but thankful to know there are others out there who can understand and help me with what lies ahead.

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Hi Shannon. I am Donna and live in Winnipeg. Where do you live, what doctors have you been referred to. I am sorry you need to be here but it is a FABULOUS place for information and support. Also, if you want to send me a private message to let me know if you have MSN messenger or Yahoo messenger, I would be very happy to chat with you there.

Hugs. You are not walking this path alone.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Hi Shannon! Welcome to OCF! Im so sorry you are here but you have found the best source for info and support. There is alot of very useful info on the main pages of OCF as well as here on the forum.

While waiting for your treatment to begin, get a complete blood test including thyroid. Have a good hearing test and dental exam, including a mold made of your teeth. You may need flouride trays made. Try to eat everything you love and dont worry about calories. Most of us lose alot of weight while going thru treatments due to different side effects from procedures. If you are thin try to add a few pounds before any treatment.

I know its a scary time for you. Start to network and everyone who offers to help you write down their name and number. Tell them you will let them know when the time comes how they can help. Dont turn anyone away who offers. Sometimes a serious illness brings out the best in people and in others they will surprise you when they shy away. With having 4 children Im sure there is something friends and relatives can do to give you a hand.

Best wishes with all your upcoming tests.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Wow Donna, I am in Winnipeg too!! Dr Gall is my ENT and he has referred me to Dr Kerr..aside from that I don't know anything else at this point. If I can figure out how the private message works here I will message you right away smile Would love to talk!

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To send a private message (PM), click on the person's name and a drop down menu will appear. Click on 'send a PM'.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2011
Posts: 5
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Thanks for the welcome Christine! The day after i was diagnosed last week I went for a chest xray and blood work, and I read some posts regarding dental check ups and have an appt for one of those on Saturday...so I am getting my ducks all lined up smile I have started to make a list of ppl who have offered to help and I have a friend who told me she is already starting to make some freezer dishes for me so my kids are well fed. I am going to enlist some other friends in that project as well. My biggest worry is making sure my kids lives are disrupted as little as possible and that they are taken care of if I don't have the strength to do it.
Thank you for all the great suggestions. I am definitely not thin..my newest silver lining lately is that at least i may lose a little weight wink

Last edited by momentsandmemories; 11-09-2011 09:26 AM.
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Sorry for your diagnosis but welcome to a wonderful forum where you DEFINATELY won't be alone thru this.
Good luck will be watching for more updates and info from you!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
SUEZ #142712 11-09-2011 02:18 PM
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HI there... from another Canadian - I'm in toronto.

I know you are waiting for your CT... I know the I want to do something now feeling. If you have your appointment time call the CT department ask them if they can get you in sooner, or if you can be put on a waiting list. Often times they have unused spaces they hold back. Explain that you are nervous and want to do it asap. And give them your info. Also you don't have to wait a week for CT results the are usually available the next day. just so you know.

Educate yourself on your particular type of cancer. We have a great medical system up here but you do have to push to get things done (its easy for them to make you wait... ) so push... make the calls you have to to try and speed up the process. They'll probably want an MRI too. And a chest xray is good, but you should have a proper chest CT. that will tell them far more than an Xray. Good luck My cancer was of the tongue. so I'm not over familiar with the vocal cords but if you have any questions feel free to pm me as well. take care~


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #142718 11-09-2011 04:31 PM
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Be very cautious with weight loss. The doctors have a goal to lose zero pounds during treatments. Its next to impossible to accomplish that goal. Many of us, including myself experienced rapid weight loss which made me feel horrible. I am still thin 4 years later. I have only recently gained a little after losing over 40% of my total starting weight. Nutrition will play a huge role in how you feel and recover. I think the better you do with hydration and nutrition, the easier it will be to get thru this and recover.

As far as your children go, Im glad to see you are taking names and numbers to build yourself a network of support. Your kids will need help and so will you. Not everyone struggles but having 4 little ones is bound to make a difference in your energy level. Try to get one person to agree to stop by your home every day to help with your kids. It will take a huge load off your shoulders. This may sound foolish but I credit my maternal instinct as helping to push me to survive. My kids only have me and they needed their mom. The 3rd time I had cancer I almost refused treatment as I was afraid I wouldnt make it anyway. Somehow I beat my doctors predictions and survived. Its now 2 years later and Im doing very well. So you see, it can be done!!!!

How old are our children? Do you have many relatives to help you?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2006
Posts: 2,671
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Posts: 2,671
Hi Shannon - I'm so glad you found this place! It really is the best place for the latest information and knowledgeable and compassionate help from people who have had similar experiences. It does help to get things ready and as you explore all the information on this site, be sure and write down any questions you might have for your doctors or for anyone here. It helps to have someone with you when you go for your appointments so you can remember what was said or suggested and discuss it later. It sounds like you already have great support with friends offering to help. Also, Cheryl's suggestion is a really good one about seeing if your appointment can be moved up so you don't have to wait as long. When my son was diagnosed, the Oral Surgeon's office made an appointment with the ENT surgeon for two weeks away but we got it moved up to the next business day (having called on a Friday)! So it can be done! Hope everything goes well for you! Let us know what happens.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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