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#141928 10-22-2011 09:26 PM
Joined: Nov 2010
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"OCF Down Under"
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Hi,
been a while since I was here. I had SCC of the tongue treated with partial glossectomy and removal of lymph nodes a year ago. I've had regular check ups and no problems. My mouth/tounge and neck all felt fairly normal and healed really well. About a week ago though my tongue (on surgery side) started feeling tender and numb again( the way it did in the weeks after surgery) and now today I've discovered a tiny reddish raised blisters under my tongue. Should I be worried? i have another appointment at the end of November, maybe i should try and see someone before that though? Any thoughts or suggestions?

x

Last edited by monicacc; 10-22-2011 09:33 PM.

Monica,33 Mum of 3. Former smoker
SCC right lateral tongue. Intially thought to be cell dysplasia and dx as SCC after surgical excision.
Nov 2010- partial glossectomy (1cm in width), partial neck dissection. Margins clear, nothing found in nodes- YAY! Benign tumor on saliva gland.
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Definitely get in before the end of nov. It's great you've done so well and it's probably not cancer - but - it will ease your mind to know the truth and not have to wait too long. Good luck


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Watch the sore and see if it goes away within 2 or 3 weeks. If not then try to move your appointment up. Hopefully it will resolve itself.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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How quickly can you get an appointment? If they can get you in within a week after you call, then perhaps you can wait a week. But if it might be longer, I would call right away. You can always cancel appointments if the situation resolves itself, I would assume. If you don't know how long it will take to get in, call, make an appointment for a week to week and a half from now. At least that is what I would do. I assume we are talking about an appointment with a specialist.
Best to you,
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
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Hi, Monica.
My surgical oncologist always tells me to call the office right away if I notice any changes or if I simply have any questions. He says it's better to have things checked out rather than for you to drive yourself crazy with worry. Hopefully, it's nothing more than some irriation, but it's better to get in there sooner rather than later. Best of luck to you and please keep us posted.
With care,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
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Probably nothing (I still get these pesky rashes and what not, too), but that peace of mind thing goes a long way. You'll be fine but better to go now and save a month worth of worrying!
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

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Hi Monica, I would agree with Christine. Watch it for atleast another week, it may just go away.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]

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