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Joined: Mar 2011
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"OCF Kiwi Down Under"
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

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Posts: 1,024
Hello Wildbille.
So you keep on keeping on.
I would be quite concerned re the egg on your neck.
Still, you sound like you are enjoying life and that is what matters. Keep us posted.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Apr 2012
Posts: 16
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Posts: 16
I see you've changed your life-style to remove all kinds of junk from your diet..my hubby has been looking into a Clinic. There is an office in San Diego.

Last edited by ChristineB; 05-20-2013 02:07 AM. Reason: removed clinic name

T3 N3 squamous cell carcinoma of the right base of tongue. He was treated with induction chemotherapy followed by definitive chemoradiation, which he completed in December 2010. non-smoker, non-drinker.
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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defeating....The clinic you mentioned is listed on Quackwatch. That means it is NOT trustworthy or legitimate. It also means it is NOT to be discussed on this forum. OCF adheres to The Health on the Net Code which ensures correct scientifically proven medical advice is given. This is part of the rules every member has agreed to when signing up to join the forum.

I hope your husband will look into only proven medical facilities. I wouldnt want to see him taken advantage of or even worse his health compromised due to a clinic using unproven scientific methods.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2010
Posts: 58
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jun 2010
Posts: 58
WildBill,
I have to honor and respect your decision. My husband passed 18 mo. after dx, after exhaustive treatment. I wonder now if it was all worth it, if we should have just said, 'screw it', after they found the mets to his lungs after nasty chemo and rads, feeding tube, swallowing problems, and much more. He was a fighter tho. Would not give up. I also respected him for that. Strongest and most determined man I know. We had over 34 yrs. of a wonderful life together and for that I am grateful.
So, live life to the fullest, but be wise as well.
Take care.




Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Did anyone see the papers yesterday about a doctor running a clinic in CA offering alternative cancer cures? She was giving some cocktail she made up, and some people died, and or cancer progressed,.There were 28 victims, and was given 15 years in prison


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Made the papers down here Paul. She deserves that prison sentence.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Apr 2012
Posts: 16
Member
Offline
Member

Joined: Apr 2012
Posts: 16
Thank you! No wonder someone ripped me apart when I mentioned it before. I thought they were just being rude. Thanks again!


T3 N3 squamous cell carcinoma of the right base of tongue. He was treated with induction chemotherapy followed by definitive chemoradiation, which he completed in December 2010. non-smoker, non-drinker.
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