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#141101 10-04-2011 04:50 PM
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EzJim Offline OP
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I finally got the call I have been expecting. I am scheduled for surgery on Oct 25 at UPMC- Montifiore. Pittsburgh bound and a new life begins. That is yhe day I join the new jaw ones in OCF and feel more what they have gone thru. I did get back up to 150 with the feeding tube and still going for more weight.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #141102 10-04-2011 04:59 PM
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Great to hear that you now have a surgery date Jim.
150lb is 68kg which I understand better. You are doing so well and I wish you all the best for continued weight gain.
Love and {{{hugs}}}
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

EzJim #141103 10-04-2011 05:00 PM
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Hi, Jim,

You have really done a super job getting your weight back up. Good for you! You will be in such better shape for surgery on the 25th. Keep pumping those calories. Also, I love your positive attitude--a new life definitely! You are in my thoughts and I know you are going to do very well.

All my best-
Anita

Last edited by AnitaFrances; 10-04-2011 05:00 PM.

Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
AnitaFrances #141105 10-04-2011 06:26 PM
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That's awesome!! Good luck with your surgery!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #141107 10-04-2011 06:36 PM
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Great job with the weight gain! Your attitude is inspiring. I was feeling kind of "woe is me" today but reading your post reminded me that it feels a lot better to tackle these challenges with a positive heart and a strong will to fight. I wish I could give you a big hug. Hope your new jaw works out very well for you.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
msmac #141121 10-04-2011 08:18 PM
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Jim,

You are my hero and I love you. There are a select few people in this world that I can look at and say, I'd follow their example (funny how most of those folks are right here on OCF forums) and you are one of them my friend. I've always read your posts and followed your story with an admiration...you F'n rock. Thank you for sharing your journey here and showing us an example of how to face every sh**ty hand that comes your way. You're a rock.

Keep on keepin on brotha

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #141123 10-04-2011 08:48 PM
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Since I already emailed my message to you tonight, you know how I feel. Just think - you'll have a nice new jaw and that old cracked one will be bye bye. We all know how tough you are, and know you'll come through this with flying colors. Wonder how many cards you'll get this time, hmmmmmm!
Big hug from julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #141128 10-04-2011 10:27 PM
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Hello Jim!

You will be in the greatest company with your friends with new jaws on the OCF forum. You know you can do everything they do...because you have been around and have seen them do it. No question, you have the strength, faith, and the attitude to get through it! And, then you will recover and be back to doing the things you enjoy.

I'll keep you in my prayers, my friend. Also, I'll blow some kisses your way and send along some hugs, too.

Sandy


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Sandy177 #141132 10-05-2011 02:00 AM
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Good for you, Jim!! Glad to hear you are doing so well on the weight gain and that you have a definite date for the surgery. Keep packing on the pounds and keep us updated.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Anne-Marie #141144 10-05-2011 07:59 AM
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Good job on the weight gain! Keep going fatty! hehehehe just kiddin!
Good luck with the operation, I'm sure you will be back on here before that day but just in case I miss you!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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