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Joined: May 2009
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Yes, my whole count is still pretty low and was told it would stay that way. I know I am dealing with some sinus issues. See my PCP next week as well. I am also thinking that the lack of sleep may have something to do with it all as well. I have not had a decent night sleep since I can remember.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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"OCF Canuck"
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You need a day away to relax and regenerate! If you can't go away plan a me day at home. You've had a lot going on at work etc... so I get the sleeping issues! Broken sleep is the fastest way to get run down. Hugs hopefully you'll feel better soon!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2009
Posts: 1,412
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Okay, so last night I went to bed early, and awoke to excruciating pain in my neck. It was almost like a muscle cramping, but not exactly. The pain lasted for about 5 minutes and then went away. Well this morning during second hour while I was teaching the same thing happened and I could not move my jaw due to the pain. I am really trying to not to flip out, but two years ago this exact type of pain happened which is was caused my ENT to go on alert. Needless to say when the pain showed up this morning at school I began to freak. It hurt to so bad tears were coming out of my eyes. This is the same side as the original cancer, opposite of the dental work issues.

Last edited by ChristineB; 09-14-2011 05:36 PM.

Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Joined: Dec 2010
Posts: 5,260
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Can you get in earlier to see your ENT? Thats the only thing that will ease your mind... Hugs! And stay strong!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2009
Posts: 1,412
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Thanks, and not I really can't. Not because of him, but because of my schedule at work. I know that is the only thing that will ease my mind, well my psychologist will bring back to reality. They have a way of doing that, you know. I see him today. I just have to remind myself just a few more days and I have gone through some of these things before and it just be scar tissue. Some of these things are very different as well. Thanks all for letting me vent on here. I just need somewhere that I can get it out.
I told my husband what was going on and he did nto help me in the least bet. He started talking about if it was back what were we going to do. Hell, if I know.
I am also dealing with a lot at school. One of my student's family is going through a difficult time. His mom is really sick and is going in fore a bone marrow and a muscle biopsy. His brother tried to commit suicide this past weekend. I just can not imagine having a hard time paying attention in the first place and then all this going on, and teachers hounding him about paying attention. Kind of useless, I would think.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Yes - sorry he's having such a hard time if it... Some teachers are like some Drs. Going through the motions and very task oriented! Sometimes they forget about the individual people they are dealing with. I'm sure some of it has to do with numbers since they see an deal with so many kids/people during the day.

I'm sorry your hubby was of little help. Mine is supportive but doesn't acknowledge the fact that this could come back - so I know how you feel! I didnt really tell him much about what is going on. Just give him updates every now and then!

Thankfully you only have a few more days to wait. And hopefully it's nothing. saying a prayer for you regardless. They never hurt! smile have a great day. I too am off to work!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
Thanks, I need the prayers. Having more pain today.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jun 2009
Posts: 875
"Above & Beyond" Member (500+ posts)
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Joined: Jun 2009
Posts: 875
Angelia: I'm adding my prayers with all the others. I believe in prayers and hopefully yours will be answered.
Big hug from julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
Thanks everyone.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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