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#140001 09-14-2011 07:10 PM
Joined: Jul 2011
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On anti-inflammatory steroid and swallowing is pretty easy. I should be able to ease off the pills by the end of the weekend. Still a little tight but clearly getting better. Taste is coming back very slowly. I can taste sweet and salt, but bitter and sour are still coming back really slowly. But the best so far is that the burning from anything acidic has really gotten much better. Everything has some kind of citric or ascorbic acid in it it seems and it had been burning me up something good. Tonight, I had some chopped tomatoes and some V8 juice, and there was a little burn but nowhere near as bad as it had been.

All and all I'm on the mend and feeling stronger and better every day. My tumor is on the shrink and I still have a few months to go with the Tx working on it. I think I'm gonna make it people!! Next stop? ALL CLEAR!!! Praise God!!


Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]


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"OCF Canuck"
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"OCF Canuck"
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That's so great! I'm glad you're feeling better - it's a slow process but it does improve!

Last edited by ChristineB; 09-14-2011 11:55 PM. Reason: typos

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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isence that taste comes back faster with cemo than with rad. I'm 5 weeks out of rad and still have any appitite and can only force one or two eggs and some vegies down a day.


dx mucoideperdermoid stage 1 .9cm tumor removed from
lower left tongue 5-3-11 rad 5-31-11 till 8-10-11 three weeks off in june 9 days in hospital healing mouth from radiation burns. 33 days of radiation.wife is caregiver
peg tube july 7-11 age 59 male.
Joined: Jul 2011
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Well I had IMRT to my larynx, not my actual oral cavity, so that could explain some of the recovery difference as my oral cavity was not as effected as yours would be. I did have chemo and rads both however. So I don't know, everyone heals differently. Hang in there Patrick.


Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]


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"OCF Canuck"
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If the bulk of the rads is to your tongue I think it makes a difference time wise as to when your taste returns. I know people who've had it to their throats etc... and taste does return faster to them. Your tongue is where the bulk of your buds are. So if you fry them it takes longer to recover.

I think... everyone is different though... good luck... it will come back eventually. It's just a slow process.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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