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You know what you need to do. And, I know what I need to do--I'm sending prayers for it to be completely benign.

Love you, Angelia!

Sandy


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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Actually things were going rather well, and My Dr had taken me off the birth control. My RO actually said we could start out journey of having another child again. So we were in that process and trying to move on with our life and all of a sudden things started changing , little by little but they were changing. I did not get concerned over one little change, but all those little changes began to start developing into things like, ear pain, tongue lump, neck pain, and I finally said I need to get this thing checked out. Knew I had an appt coming up anyway so I did not bother changing it.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Good, as long as you have it looked at that is the most important thing. Also don't forget working with kids leaves you open to infections etc... An ear infection is highly possible combined with a bug. I'm still hopeful that it's a bug you've picked up and the tongue issue is scar tissue. Hugs and take care!

Last edited by Brian Hill; 09-11-2011 03:25 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Angelia, we are waiting for your report from your dentist today - sending prayers for another one where you come home with a sigh of relief. Hugs, Jane


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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I did have to have crown on a tooth, and he looked at my tongue and did not see anything visible that concerned him but did hit an area that was very painful to touch. He said that could just be the same issues I have been dealing with due to the side effects of radiation. I was pretty pleased with what he said. He did say that I needed to go ahead and get it checked out by my ENT due to the ear pain.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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Some good news to relieve the stress !! Get it checked out to be sure but I'm glad he was positive! It could be irritation from rubbing up against the tooth that needed he crown as well! Yeah!!! Good luck!

Last edited by Cheryld; 09-13-2011 05:34 AM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Bet you are so relieved!!!! This is exactly why you need to not sit around worrying. It will only get you more upset and you will feel worse. Now Im praying the ENT agrees that this problem is scar tissue. Good luck with your next appointment!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Things sound like they're looking up for you Angelia. I pray that you get a good report on the 20th from your ENT. Since your dentist didn't see anything of concern, hopefully your ENT will do likewise. We just never stop worrying about things that appear and strange pains near the area. I know you cannot get it off your mind, and also dealing with school and the never ending administration/politics you are encountering this year doesn't help. But, those things usually are temporary, and hopefully nothing causing you too much worry, because you don't need something like that to add to your health worries. Maybe, try to avoid/ignore those issues. On the 20th, I pray you get a good diagnosis from the ENT.
Hugs from julieann



Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Thanks all, but I am feeling better about it all. I think I went overboard when I saw the lump show up out of nowhere. It has actually decreased in size a little, but I am still having the ear pain, opposite side from the crown.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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Maybe you picked up a bug. Welcome back to school! Its the worst place if you are even remotely compromised. In fact even if you are healthy! ;o) Take care and try to give yourself some more time. hugs!

Last edited by ChristineB; 09-13-2011 07:09 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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