| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I have been watching this whitish area on the side of my tongue for quite sometime. Making sure it does not grow, and it hadn't been until this morning. I looked at it this morning and it was noticeably bigger. Have a dentist appt, on Monday so I will have him look at it. MY ENT appt is now until the 20th. To add to this I have been having intermittent pain in that area and in my ear again. The last few days I wake up to horrendous neck pain. I keep thinking it is a muscle spasming, because I have to turn my head and tweak it a little to get the pain to stop. So I am going to have my dentist take a look at it on Monday as well as repair a crack in my tooth. Will see my ENT a week after that if the dentist is not concerned. May move up my ENT appt if anything changes drastically over the weekend. Keeping my fingers crossed that it is nothing.
Last edited by ChristineB; 09-10-2011 03:38 AM. Reason: wrong topic
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Angelia, you know the drill!!! If a sore has been there for 2 weeks then get it checked by a professional. Given your history, Im surprised you waited. You are usually right on top of these things. I know it happened at a bad time with school just starting. Please let us know what your dentist says Monday. If it were me, I would be going to the ENT on Monday or Tues. ((((HUGS))) and prayers to you!!!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I called my ENT about it, but the pain decreased over labor day weekend. Yes school is crazy, crazy, crazy. Right now I will find any excuse to get out of there. I am so unhappy, leave school crying almost every day this year. Have to force myself to get out of bed, and remind myself it is for the kids. I can not stand the administration or the politics that are involved this year. One more thing, it really is not a sore. it is just a white area on the side of my tongue and looks like scar tissue. The fact that it is bigger today is making the alarm bells go off.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Just wondering if it is Candidiasis (Oral Thrush), the condition results in white patches that are often cottage cheese-like in consistency on the surfaces of the mouth and tongue.
Anyway, please consult your doctor soon. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | It is not thrush as I know what that looks like. My husband looked at it and said that it does look like the initial cancer I had. A raised lump, painful, and hard. I am now also having some soreness right underneath my right ear and behind my jaw bone. I hate these roller coaster rides.
And to add to that I have been extremely tired these last few days. It is like I wake up in the morning and I did not sleep at all, even thought I have been sleeping all night.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Christine, I was just thinking about what you had said earlier about me staying on top of things. I guess all I can think of is the last few times I was worried about a spot on my tongue it has been scar tissue/radiation damage and I got worried for nothing. I keep telling myself it is just radiation damage, but really how do we know that if they do not check it out? I guess I have just been putting it off. My neck has been feeling different for awhile now, but I have just chalked it up to radiation damage rearing its ugly head again. I really did not start worrying about it until the pain began to show up in other places. I really hope I did not wait to long, after-all I had a completely clear PET scan in July, same thing as two years ago with my recurrence. Clear scan in July and biopsy in OCT. showed cancer. In my mind I keep thinking surely it could not happen again that way and show up so soon. Who am I kidding? If it happened once we all know it can happen again. I just do not know if I really want the answer to what it could be. It look just like it did two years ago and is acting just like it. The ear pain started first and then a lump showed up and the rest is history.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Try not to worry but do have it checked I think if you listen closely enough our body tells you what's up.. The question is do we lsten? Usually yes but maybe because you've been so preoccupied. Try not to worry as you said it could be scar tissue etc... And your ear could be an infection. Just wait until you see your dentist. But don't wait too long - to see your ENT I h suggests it. Hugs! Prayin it's nothing!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I see my dentist on Monday and my ENT a week from this Tuesday, which was a regular scheduled visit.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Angelia, I am just hoping that is it is not a recurrence and what Cheryl is saying is true. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Please dont get yourself all worked up! We are all so afraid of a recurrence. But think about it.....we can NOT live our lives in fear of 'what if'. You just have to go on with your life and pay attention to changes.
I was surprised to read your post. You are always so in tune with your body. Its not like you to put things like this off. Lets think logically and positively! Please dont scare yourself about waiting. Its not like it has been this way for 6 months or a year. You have had regular check ups and I know your doctors are very thorough. This has recently changed and now you are getting it checked which is the right thing to do.
Im concerned that you are worrying yourself so much that your body is now focusing on every little twinge. We are always our own worst enemies! Try your very best to keep yourself busy and go get it checked out next week. A couple days is not going to change anything. Please try not to worry, it will not change what is going on inside your mouth. You know you have scar tissue inside your mouth after everything you have gone thru. All kinds of things can irritate our mouths.
Keep us posted!!!!
(((HUGS)))) and prayers to you! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |