| | Joined: Sep 2011 Posts: 8 Member | OP  Member
Joined: Sep 2011 Posts: 8 | I'm as new to cancer as I am to this forum. Can't say I'm glad to be here, but I'm glad that you all are. Had a biopsy done last Wed and yesterday found that my sore throat was due to a mass on my left tonsil. Pathology read "Tonsil mass, Invasive poorly differentiated keratinizing squamous cell carcinoma".
I'm trying to get the scans scheduled to see if it's spread, and staged, hopefully within the next week. I'm sure I will be getting to know many of you. Again, thanks for being here!
Don
Stage II Tonsil SCC, Radical Tonsillectomy and Neck Dissection, Partial Soft Palate Resection 10/19/11. More to come.
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Don, welcome sorry you have to be here, but the people on this forum have been thru just about everything and this site is a fountain of info. First off, I live in Huntley, IL and was wondering where you are going for treatment ? I had my surgery done at Loyola Medical Ctr in Maywood at the Cardinal Bernadine Cancer Center. I had tongue cancer, fully contained with no lymph node involvement. I had 6 weeks of radiation treatment, but no chemo.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Sorry Don you have to be here and unfortunately, I have to welcome you to the forums. I am hoping that it has not spread elsewhere.
If you have to push somebody to get scan, please do it. You are in need of urgent treatment.
Take care and may god be with you.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Eshwar is right - push push push - time is always important when dealing with cancer - I too am sorry you have to be here - but this is a great place for support and advice. You. Ight want to know your HPV status as that is one of the links to tonsil cancer! Hopefully it's contained to the tonsil. And do get treatment at a comprhensive cancer center even if it's inconvenient travel wise. They are pros and your life is more important. Take care and let us know how your scans go.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Hi Don! Welcome to OCF! You will find tons of info and support here. Best wishes with everything you are facing!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Just adding my welcome. You have one thing going for you - no major holidays to slow things down - my husband had T'giving, Christmas AND New Years to contend with! Keep use updated, and best wishes.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2011 Posts: 267 | Welcome to the forum. Sorry about your diagnosis. You will find this place a great source of information and support.
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Welcome Don and do get your cancer slides tested for HPV.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2011 Posts: 8 Member | | OP Member
Joined: Sep 2011 Posts: 8 | Thank you all for sharing and welcoming me here. I am scheduled to have scans done tomorrow, Saturday, so I'll know more in the days ahead.
Thanks again!!
Don
Stage II Tonsil SCC, Radical Tonsillectomy and Neck Dissection, Partial Soft Palate Resection 10/19/11. More to come.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Welcome, Don. As you can see you are not alone with the caner on the tonsil. My 1st reaction was "Who ever heard of tonsil cancer"? My Mom's was "I knew I should have just gotten those cut out when you were young". Back in the 50's tonsillectomies were being done "just because". Hope to hear soon of your scan results.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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