Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
Cheryld #138733 08-26-2011 09:45 PM
Joined: May 2011
Posts: 287
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: May 2011
Posts: 287
Hi Missy, my father also had partial glossectomy 2 years back. ENT had used his remaining tongue to reconstruct, i.e. they folded it to make it a full tongue, shorter in length though.

It takes a while to adjust but he is fully functional without any significant speaking and eating issues.

Depending on your husband's case, they will try to reconstruct as much as possible to retain functionality.

Wish you and your husband all the best for surgery. As Christine mentioned, get him all his favorites to eat now as it will take really long to get back in track.



Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Eshwar N #138875 08-29-2011 05:15 PM
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
Hi Missy and welcome to OCF!! Without a doubt you have found the best site for information and support. I would also suggest for maybe your husband to join and talk to other patients/survivors. It really is what changed recovery for me and my outlook in general.

Like Eric said...it's ok to be scared. I think it's good to be scared actually....I wasn't in the beginning (not sure why) and it hit me about 2 years later and it wasn't easy.

Please know there are a lot of people here just waiting to help and support you through this journey.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
missyb #138920 08-30-2011 08:34 AM
Joined: Aug 2011
Posts: 2
Member
Offline
Member

Joined: Aug 2011
Posts: 2
Mine is a different situation I believe. My spouse deserted me just over a year ago for a younger woman. We are only separated. Nothing legal. Had No previous warning. I thought we had a good marriage, no problems that I knew of. She was a sort of family member in my home almost daily. Since then I have tried to keep tabs on him, because he was already disabled with a spine injury from 40 yrs ago and barely can walk. Not in the best of health when he left. The other woman is staying with him out of the guilt she has, for seducing him and getting him to leave me,and the guilt he puts on her for giving everything up to leave with her. She is not the caregiver type. Now he found out the beginning of July he had I believe ( he doesn't talk to me since he left) Mandibular Neoplasm stage 2. He had 3/4 of his lower jaw bone removed, and reconstructed 7/16 and his teeth. I really don't know his prognosis, or anything past the surgery. He still has a trach, oxygen, and they put his g tube in Fri. 7/26. He may not get to go home, but to a care facility, because of his other health problems. He allowed me to go see him twice, but she started telling the nurses and him lies. So I said I wouldn't go back. So now I'm worried sick,I still love him dearly, and worry about him all the time. And not sure if he's having to go thru radiation and/or chemo after the mouth and jaw heal or what. Can anyone who has possibly gone thru this fill me in on what he has in store ahead of him yet? Any information would be greatly appreciated. Thank you

donswife #138922 08-30-2011 09:06 AM
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
Hi Donswife,

I'm sure there are members who may be able to help you out.

You should start your own topic (thread) though. This thread was started by Missy and most of the responses/comments will be directed to her. If you have your own thread the comments will be for you.

Just go to the forum that best fits your topic and go "topic options-new topic"

Last edited by suzanne98; 08-30-2011 09:07 AM.

Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
donswife #138923 08-30-2011 09:10 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
donswife: I'm so sorry for the difficult place you are in. You should probably start your own post on this so that any replies could be directed to you. It sounds to me like you could use some legal advice before you do anything legal, -especially if your spouse is in serious condition and something should happen to him. Also, I do not have a legal background, but as his legal wife, wouldn't you be able to get information from his doctor? You could direct your spouse to OCF so he or his partner could get some helpful advice in his recovery. The prospect of divorce is traumatic for many. I went to a Divorce Recovery class which helped me a lot. I hope things get easier for you.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Page 2 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,924
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5