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EricS #138565 08-24-2011 06:38 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Welcome to OCF. Sorry you had to join. As you can see, just like the small print in the auto ads: "individual mileage may vary". I worked through my entire TX the first cancer, but from home via secure VPN connection to work for documents and Blackberry with speaker phone for emails and conference calls.

Your profile indicates you are a financial advisor and I did lose my voice at the end of TX for a week or so which made phone communication impossible. Otherwise, like Eric, William and David, I found work doable. In my case it was actually good to be busy from 1 to 4 am when I couldn't sleep.
Keep the faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2010
Posts: 224
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: May 2010
Posts: 224
I will go with what Eric said but change it ever so slightly, lol. Now remember, everyone is different, and I experienced far worse side effects and issues then most, and not being dramatic, lol.

I had eating problems and also trouble with the feeding tube.


I think all of my issues, well after the mouth sore issues, were mainly caused by the inability to stay hydrated and get in the calories I needed.

Everyone is different and I wished i had the experience some others had. I guess the biggest point i am trying to make, try your best to stay hydrated and get in as many calories as possible!

Best of luck!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
EricS #138622 08-25-2011 11:12 AM
Joined: Jun 2011
Posts: 188
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jun 2011
Posts: 188
Eric, hysterical and story repeated several times already. My Dad is seeing flying monkeys.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
Caco #138658 08-25-2011 07:55 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Welcome to OCF. You came to the right place for support. As many of the posters have said we all go through treatment differently. Me, I had the worst of the worst. If it could wrong it did. I was not able to work form the start of treatment and was off for about two months after that. I only went back work then because my FMLA ran out. I am a teacher and it is very taxing, and I had a rough time of it going back. But now I am back at it full steam ahead and doing great. You will get through this. I pray that you go through it with ease and not many problems.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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