| Joined: Aug 2011 Posts: 17 Member | OP Member Joined: Aug 2011 Posts: 17 | [quote=Eshwar N]Hi Venkat, good to hear from you. Now since your treatment is over, try Papaya (Juice) to get rid of thick saliva. Continue to gargle and drink plenty of water.
You can now try Extra Virgin Olive oil. Just swish 2 tsp and spit. It will help you lubricate your mouth. [/quote]
Hi Eshwar,
I almost forgot about Papaya, the last time you told me. I have marked it now for immediate attention from my mother and family around.
I am able to swallow liquid foods which I am OK till I get around with the remaining ulcer on tongue. I will definitely try the Olive oil.
Could you please suggest any mouthwash that you might have used for your dad ?
Thanks Venkat
- Age 34 at DX 4th June 2011, Non-smoker, Non-alcoholic - SCC on lateral right border of tongue, T1-N0, - Surgery done to remove tumor on tongue - RND to remove 9 lymph nodes, no MET(s) - 3 weekly cycles of 50 mg cisplation chemo - IMRT RAD 30 exposures, still 11 more to go
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Congratulations on completing your treatments! My husband uses the Biontene products - although even they were stingy immediately after rads.
It may help you to sleep propped up. The pain meds will either help you sleep or keep you awake - if they keep you awake, talk to the docs about it. Be sure to keep water next to you; if you don't have to get up to get water you may be able get back to sleep more easily.
I am glad to hear that you are able to manage fluids. If it gets a bit harder to swallow in the next week or so - don't be alarmed as the radiation is still hitting. About 10 days from the end, that will be over and you can begin to heal in earnest. Until then, sleep, take nutrition, read or watch movies, and be patient. We're rooting for you!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Biotene makes a very good mouthwash. If it is too strong for your sensitive mouth, dilute it with some water.
Congrats on finishing your treatments!!! I know right now you are feeling the worst you have felt thru this. Very soon you will begin to feel better. Yes, in one month you will have improved alot!
If you rinse your mouth with 2 cups of warm water, 2 tsp baking soda and 2 tsp salt it will help with the mucous. Repeat this several times per day. Alot of us have also taken some cold medications like Musinex to help cut the phlegm. In about 3 or 4 weeks the thick gunk in your mouth and throat will subside and turn into dry mouth. For that, you will want to get some Biotene dry mouth gel. It will help you manage the dry mouth. I also slept with a humidifier.
Best wishes with your recovery!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Venkat, my dad was on primarily on Bicarb/Salt gargles and occasionally on Iodine gargles as due to lack of saliva, you may have occassional bouts of thrush (since the surgery and rt he was never able to use tongue cleaner). You can also try Biotene, if you can find it in India, probably ebay may help.
Doctor had prescribed Senquel-F toothpaste and adviced my dad to brush atleast twice a day.
All the best and hope to see you online more frequently now. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi venkat - glad you're done! Couple of things - it's usually 2-3 weeks before you start to feel better. But hopefully in a months time you will be on the road to recovery! Ok I know you're in India so product wise Im not sure what's offered there - here I use tom's of maine natural alcohol free mouthwash - it's minty! I put a capful into my waterpik with a bunch of water (frankly I'm four months out and mint burns still) and spray it about my mouth used to help clear out the mess in there!! It has different settings - from weak to strong - and different attachmets - for cleaning between teeth and along the gums - and one for your tongue! If you cant get the mouthwash the waterpik with even baking soda and water will help!
And I know how you feel one small sore can cause all this - bizarre! Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2011 Posts: 17 Member | OP Member Joined: Aug 2011 Posts: 17 | My thrush seems to be becoming worse day by day. Initially, it was a small ulcerish patch on the left border of the tongue, now it has reached the back of my last teeth (third molars, I guess). With that it becomes to difficult to even open the mouth a little bit. I was recommended Flucanazole by radiation doc, but I seem to have discontinued sometime last week because of constipation. I will start it back again.
Any suggestions on getting it under control?
- Age 34 at DX 4th June 2011, Non-smoker, Non-alcoholic - SCC on lateral right border of tongue, T1-N0, - Surgery done to remove tumor on tongue - RND to remove 9 lymph nodes, no MET(s) - 3 weekly cycles of 50 mg cisplation chemo - IMRT RAD 30 exposures, still 11 more to go
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Hi Venkat, try using povidone iodine gargle (Betadine/wokadine). That will help kill thrush then you can continue with Salt/Bicarb gargles. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Aug 2011 Posts: 17 Member | OP Member Joined: Aug 2011 Posts: 17 | [quote=Eshwar N]Hi Venkat, try using povidone iodine gargle (Betadine/wokadine). That will help kill thrush then you can continue with Salt/Bicarb gargles. [/quote] Thanks a ton Eshwar. I used to use it (Betadine) post surgery per my surgeon's advice. But later radiation doc said to stop using it during rad treatment. I have started using it from today. It does not seem to hurt mouth much though my mouth feels dry. My surgeon had told me to swish it for 5 min if possible and then spit it out. Not sure if 5 min is necessary.
- Age 34 at DX 4th June 2011, Non-smoker, Non-alcoholic - SCC on lateral right border of tongue, T1-N0, - Surgery done to remove tumor on tongue - RND to remove 9 lymph nodes, no MET(s) - 3 weekly cycles of 50 mg cisplation chemo - IMRT RAD 30 exposures, still 11 more to go
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | For my father, Betadine was prescribed by the Radition Doc, so I do not see any issue in using it post-rad for you. Swish it as long as you feel like so that it reaches everywhere and long enough to kill all microbes in your mouth.
My dad had a review today and the thrush seems to have come back for him so doc gave him Candid Mouth Paint to apply three times a day to get rid of it. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Stay on top of the thrush. It will NOT go away on it's own. Some OC patients develop chronic thrush, i.e. constantly occurring and can only be treated by constant meds.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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