| Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | I have read folks adding protien powder to their drinks what do you use? I need to get Ron something to add to his IF he don't get that NG out Thursday but will do anyway if he does get it out depending on how he is healing. Thanks
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I use whey protein powder from the makers of Muscle Milk. You can get it in either chocolate or vanilla at Costco very reasonably and its has 27g of protein per scoop. I would recommend getting a whisk ball shaker bottle too, you can get them at the RiteAide for cheap or GNC. They are easy and save the cleanup of a blender.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I use vegan protein - vega is one of them - any plant based protein is good!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2011 Posts: 13 Member | Member Joined: May 2011 Posts: 13 | Hi Suez, I have used whey protein powder and plant based protein powder. Whey is usually made from dairy and plant based can be made from pea, rice and hemp or a combination as well as sprouts. As with any food it best to seek out the highest quality. I always look for organic and/or pharmaceutical grade supplements. For years I've used Life Extension Foundation ( www.lef.org) that uses the highest standard in producing their supplements. They offer substantial discounts to members. Amazon.com also has an auto ship policy that offers 15% discounts which helps reduce costs. I used whey protein for many years but recently switched to a plant based protein called Life's Basic Plant Protein. I switched because I decided to go to a full plant based diet and eliminate all dairy and animal food for environmental, spiritual and health reasons. I'm a firm believer in using only fresh food (organic when possible) ingredients in balanced recipes to make sure I get variety and the best quality. Hopefully it will add to my lifespan or at the very least keep me disease free. Good health!
Jesse Jones Throat Cancer 1984, 1987, 1988 Stage IV squamous cell Modified neck dissection 1984, 1987 Radiation 1988 G-tube since 2002. use mic-key button 20FF use only fresh unprocessed food meals thru tube
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Ditto - I was a veg head before all this happened still am - even more careful now the the stuff I buy is organic! And fresh - as much as possible!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | www.livestrong.com/article/17876-soy-protein-vs.-whey-protein/Here's a good article from livestrong on the differences between the types of protein.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Thanks Eric - it was an interesting article - what they didn't include and should have are the animal free, soy free, protein products. The plant based proteins that include, pea, hemp, Flax, and Brown rice proteins. These aren't as smooth as some of the soys but depending on who you believe far better for you - also another plus...?? It's said that sugar contributes to the inflammation process that supports cancer - most of these vegan products out there have natural sugars like stevia, or xylitol that do not effect the glycemic index! soy they say is now so manipulated that it's scary!!! take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Suez - Good suggestions above. The only thing I would add is whichever kind you decide to get, try to get a small quantity to start. I bought some protein powder to add to my son's milkshakes and I didn't happen to mention to him that I added a small quantity (about one tablespoon) to his milkshake. (The Health Food Store where I got it said there was absolutely no taste to the protein powder) Big mistake! After the first small sip he took, he asked me what I put in his milkshake and refused to have any part of it! Ever! From then on, he would always ask me what was in anything I served him before he even tried it. Hope everything goes well with the appointment on Thursday.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Anne-Marie, I do believe your son could tell that something wasnt right with his shake. I didnt like the high protein powder in my milk shakes either. My taste became super sensitive where I could taste a couple grains of salt or even worse pepper.
How about trying good old Carnation Very High Calorie? You can order cases of it for about $44 total from the Amazon link on the main forum pages. If refrigerated, it might not be too bad to drink. I would drink yoo-hoo while going thru radiation. I loved that stuff, for some reason I could taste the chocolate and it was very soothing to my sore mouth and throat. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I understand people have different views on diets etc so I'm actually steering clear of the "more healthy and responsible" parts of protien and just focus on the main differences and benefits/drawbacks to each and then everyone can make their own "educated" choices. The body needs protiens, it's a macronutrient usually found in food such as meats, dairy, beans etc...that the body breaks down into amino acids, the building blocks if you will. Out of the 22 amino acids, the human body cannot synthesize some of them on it's own and need to be supplied by diet, these are called the "essential" amino acids. Now we need to look at "complete" and "incomplete" protiens, which are sources of protien that contain adequate proportions of the essential amino acids to sustain the dietary needs of the human body. With the exception of soy and quinoa, vegetable sources are usually significantly low in lysine and to a smaller extent methoinine and threonine and are therefore considered "incomplete". Animal, soy and quinoa sources are considered complete as they have significant proportions of all the essential aminos. When looking at protien powders we need to be making sure they are "complete" and give you all of your essentials, if not, why supplement. You can get get "complete" vegetable based powders they just have to have added significant amounts of lysene and a smaller extent of threonine and methoinine to them to get them to be considered "complete" if they are not derived from soy or quinoa. Protiens actually have a Biological Value scale with the bar being set by the Egg, which has a BV level of 100. (Eggs are a super food on a biological value scale by the way) When protiens are compared they are compared to the egg. Vegetable protien is lower on the scale and is generally absorbed slower by the body, however usually has higher levels of antioxidants. Soy is on the about the same level as the egg, is again absorbed slower. Whey has a higher BV then the egg and is absorbed much faster...which can lead to waste, I'll get into that shortly. IF you are not constantly tearing down and rebuilding your body or are in a hypermetabolic state (healing etc...) then plant based protiens make sense for your body (as long as they are complete). They are effecient and have higher levels of antioxidants. If you need your protien to be absorbed quickly as your cells are constantly in need of building blocks to gain or maintain, then whey is the way to go. I use whey due to my lifestyle, and I like cows. I like to eat cows, specifically steaks and ribs however I think any part of the cow covered in BBQ sauce is fair game in my book. I don't even care that the cow has been hopped up on hormones and steriods, in fact I say hop them up on antidepressants too so I know I'm eating a happy cow. It should be happy, because it's making me happy by eating it. When I die of heart disease or colon cancer, I'll die happy. Somethings got to kill you it may as well make you happy right. If OC kills me I know I had a lot of good sex getting there I would've dodged that bullet with Gardasil if it were available or known to me but hey I'll take the consequences for the action...ahem. Sorry for the ridiculous, I wouldn't be me if I didn't go there Eric
Last edited by EricS; 08-15-2011 10:56 PM. Reason: always spelling
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | Eric: You crack me up.... sometimes I have to read your posts twice because I can't believe what I read....
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | U crazy nut Eric!! I love you and your honestness and living life in the way do, in humor! Cuz if I didn't live it that way, I'd be insane from the way this world really is and what life has dealt me so I just laugh about it! And yes...I too have had a great sex life in my younger days, and I loved almost all of it! lol And Ron didn't have his swallow study, it was just a followup. His apt for that is the 23rd of this month, but, he is eating now himself, so far no pneumonia, he ate 3 yes 3 bowls of ice cream yesterday, Chocolate Peanut Butter Cup and Oreo cookie. I asked him how his belly was this morning and he said fine, I ate a little bit of the PB one with him and the chunks of cups and mine wasn't fine...Saturday morning he wanted scrambled eggs, so I made them in some bacon grease and he loved it, said it was great not to burp up formula taste.
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Ingrid, I should probably read my posts 2x too, protein is a micronutrient and not a macronutrient...(smacks head) I'm an idiot. Hahaha!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | Eric I told Ron about you, lol how you are so positive in your outlook on life as each day comes you grasp it and enjoy it to the fullest, your "beliefs" in herbal non legal meds(why do you think he ate 3 bowls of ice cream yesterday?) i love messing with him when he's so "happy" he cracks me up!
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Sue, I'm glad that Ron is eating and I really do appreciate you my dear. You rock. Personally I think messing with "happy" people should be a sport and judged. What I find funny is knocking on their door really loudly and yelling "Police!" it always gets a rise out of them and a good laugh for me I'm kidding that's cruel...funny but cruel especially if you ruin a dime bag of happiness That's happiness abuse and should require counseling. Live life, be well Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | roflmao! omg, i laughed outloud when i read your response eric and i'm at work, oh well they are used to me talking to myself anyway so what's an outloud laugh coming from my office. i never thought about doing that one bout yelling out POLICE hahahaha my ex husband is on the SWAT team. i'm sure my kid would have pooped his pants if I done that when he was younger! Yesterday I came home from work and Tuesday's are BW3's Wing night I go almost every week, and there was Ron all cleaned up, showered and shaved his "half a beard" that is left that grows and he went out with me! He looked very good, best he's looked since before his surgery actually. He came home afterwards and he was hungry after watching me eat and I made him some Barilla I think it is Mushroom Alfredo sauce from the jar with some fettucini. He told me this morning he feels really good, I told him cuz he's eating again getting food in his belly. Yay!!
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Feb 2010 Posts: 79 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2010 Posts: 79 | Eric - Happy cows! I love it! I can't ever imagine giving up beef - even if it doesn't taste like I remember! I'm just going to keep trying and someday!!!!
Sue - you are bringing out the best in Ron!! Keep it up!!
You all just make me smile and are always there when it's needed! Thank you to you all!
Cathi
57 when diagnosed. Heavy smoker. Social drinker. Diagnosed 7/9/09 with tonsil, tongue & neck cancer. Chemo induction (Cisplatin, 5FU & Taxotere) & 35 radiation tx + 7 Carboplatin. Head and neck CAT scan on 1/15/10 shows no cancer. 1/27/12 First PET/CAT scans in 2 years - All clear!! recurrence mid-2015 OCF supporter and avid OCF CO and NJ walk attendee with worldwide friends
*** 1-7-16 passed away unexpectedly ***
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Eric... Best be careful one of those happy cows may just bite your tush!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | i blended ice cream, whole cream and ensure with tasteless whey powder for a minute so that there was no grit the first time i set this in front of my dad. i expected complaints but got a thumbs up.
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | ...and it's like 600 calories and 25g of protein
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Awesome! Check there are some out there that have even higher protein - for me one and a half scoops of the protein powder I use mixed with 4 tablespoons of cottage chees, almond milk, fruit, and flax oil yields about 50 -60 gms of protein, I let my intake during thte day take care of the rest.. Chocolate is not bad taste wise. I would avoid heavily sugared products though... Try something with stevia or xylitol as a sweetener (all natural plant based sweeteners that have no impact on blood sugar!, sugar promotes thrush, and feeds cancer (Pet scans work by reading sugar uptake in cells. Cancer cells are sugar hogs, no sugar less growth? ) just a theory but one that has been studied. High carb products that have simple sugars are the worst, complex carbs like fruits are better. There are some good ice-cream products out there with no sugar and some great vegan proteins as well. I'm still going through them trying to find one that has no grit (sun warrior is great - very fine and blend able) and one that has a good taste (mrm veggie protein - chocolate) there has to be one out there that has both !!! I'll find it in the mean time I continue to experiment on me! Good luck, glad your dad is doing okay! Hugs
Last edited by Cheryld; 08-25-2011 04:49 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Chocolate still tastes bad to my husband, but fortunately fruits and vegetables taste good. He uses Now Sports whey powder with natural vanilla with his lunch protein shakes. His department has a kitchen with a blender - he mixes milk, whey powder,Benefibar, a Carnation Breakfast Essentials packet, and one or two of the individual serving Musselman's applesauce cups. It still takes him a long time to eat, so a protein shake for lunch works well. I mix the whey and benefibar up, and portion it out in baggies so its easy for him at work.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Awesome!!! As long as he's eating it that's great - I still have a power smoothie for breakfast!! Chocolate with banana - I toss in an organic all natural fruit juice that has real fruit and vegetables in it - it tastes great - I can't taste sweet but chocolate is okay! whatever works!
Last edited by Cheryld; 08-25-2011 04:51 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | That's just so bizarre about the tastes. Cheryl, can you whistle? That's one of the things that just came back for my husband. He puts seed out for the birds in the morning, and whistles to let them know its there - the blue jays in particular respond and come diving at the feeders. He found it very depressing when his whistle was out of whack with the mucositis, and is glad it has returned.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Not yet - but almost! I can form a whistle nd make a little tweet but no real whistle but then I was never. Good whistler! take care! And yes taste is very individual!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | ...tomorrow i'll let him know the creams from horny cows eric. that's precious.
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Oct 2011 Posts: 6 Member | Member Joined: Oct 2011 Posts: 6 | i use scandi shakes...your dietician will know about that
Male, 29YO, Non-Smoker/Non-Tabocco use DX: 7/11 with T4L1 tongue CA Surgeries: July/11- 1/3 glossectomy, Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG Regrowth after 1 month of chemo -10/29/11 Chemo: 9/13/11, 10/4/11 Radiation w/chemo: 11/11 | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Speaking of tastes, and this may be going off track a bit, but do any of you out there have, or had a putrid sweet taste ALL THE TIME, from morning until night. I wake up with it, and so far haven't found anyone else who has it or experienced it. Having every test known to man (not even associated with oral cancer or radiation, etc.), but to no avail. Just wondering since tastes are mentioned here. Thanks, julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | No sorry... I wish I could help... Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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