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dj8 #137372 07-27-2011 09:53 AM
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From what you have written, it seems like you had a high-grade dysplasia or "Carcinoma In Situ (CIS)" but seems like it has progressed with some invasion of the surrounding tissues.

Technically it is TisN0M0 (Stage 0) and you have been lucky to catch it very early before it could turn invasive and tumorous. Just keep a close watch and stick to the follow up schedule (Next month and then once in three months?). I would suggest to get a PET scan after 6 months just to be sure about Lymph nodes.

You missed by a whisker so take good care.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Cheryld #137397 07-27-2011 03:17 PM
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yes i think the hard thing is defining what is cancer. Is there an objective idea out there? when does dysplasia become cancer. What are the screening tools to identify dysplasia early. It seems not alot of info is out there about screening for dysplasia in the mouth? I feel like this should be part of physical and or dental exam? My dr is good but he said with leukoplakia it is hard to tell and only 4 percent of white lesions turn into cancer?

dj8 #137412 07-27-2011 08:28 PM
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There is no definitive timeline for dysplasia becoming cancer because lot depend on your immune system and oral hygine. However, dysplasia is early pre-cancerous growth and the risk of cancer is there.

My father's ENT had said that any oral lesions lasting longer than a month, after tobacco cessation, quitting betel chewing, abstinence from alcohol and avoidance of irritants like sharp-teeth and foods items know to cause irritation, are potential threats and better to get them screened.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Cheryld #137433 07-28-2011 09:19 AM
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I would suggest that dj first get a copy of all his records (which include doctor's notes)and if he can't decipher an actual diagnosis for which he's being treated, ASK. If he still doesn't get adequate answers, he always has the option of taking those notes to another doctor in the field for a second opinion.

The medical community is almost in bow-down mode as far as patient rights these days, so no one should be afraid or intimidated by asking for your own records. And it no longer takes weeks; I got mine within 24 hours.

Don't you agree Cheryl?

morgan44 #137447 07-28-2011 04:50 PM
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Received results from the biopsy on the tissue from the left side of my tongue that was removed by the co2 laser. Received a message from dr and he said he had good news for me. Talked with his secretary on the phone. Results were the following mild to moderate dysplasia with an ulcerated squamous spot in the epithelial tissue of the tongue. I will talk with hte dr tomororrow. Sounds like very goood news that tissue is mild to moderate dysplasia? Thanks

dj8 #137448 07-28-2011 04:50 PM
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for feedback!

dj8 #137525 07-30-2011 10:37 AM
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Looks all fine!

Just keep a close watch on that tongue. If you see anything suspicious, check with your ENT.

Quit smoking, drinking and maintain oral hygiene. As I said earlier, you missed by a whisker so take good care.

God bless.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Eshwar N #137547 07-30-2011 09:28 PM
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Definitely agree... You should be able to get your records immediately an ask questions. Educate yourself, and if you don't get answers get a second opinion. Good luck!

Last edited by Cheryld; 07-30-2011 09:30 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #137591 07-31-2011 08:57 PM
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Thanks I will definitely go for regular check ups. I feel lucky that I was able to get this diagnosed so early. The dentist initially saw the leukoplakia and referred me to get biopsy. Then I had an lesion which caused pain. But I must say that I was not educated well about oral cancer. I didnt understand that it could be aggressive so quickly without you knowing. Very scary. They should check my tissue for HPV as causal factor right? And if HPV is determined to be the cause of this is drinking still correlated with causing this or is it just HPV? Is there anything I can do other than 3 month check ups? What should i look for in th future? If it started as leukoplakia this time if something does come back would it typically be the same looking thing or in the same area or could this change?

dj8 #137613 08-01-2011 05:45 PM
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Look for more irritation, sores that dint heal difficulty swallowing. Etc... If you know for sure you've had HPV that's good, but not necessarily related to oral cancer / leukoplakia. drinking and smoking can cause any irritation to worsen... Thereby it can cause the progression of some cancers. Everything in moderation - good luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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