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davidcpa #122972 10-11-2010 10:14 AM
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Thanks everyone for your positive thought and encouragement! We will stay positive and focused on getting rid of this cancer!!


CG to 44 year old husband, Dx: 9/23/10 SCC T2N0M0 (Right Tonsil)

Radiation only started on 10/13/2010
13/33 Radiation Treatments done!
davidcpa #123058 10-13-2010 11:21 AM
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Hi David,
I am new here. I was reading the about HPV. Is it that contagious? a person get through kissing or drinking from some elses glass. We are a monogamous couple it is actually insane how he got this virus. Can the spouse get it too ?


Caregiver to husband 40 yrs. Was diagnosed SCC 09/2010. Soft palate, lft of tounge. Stage 4 HPV-
Radiation 70 gy & chemo start Nov 1 End Dec 17/2010.
1MRI-7 Mar 2011. Neck dissection-14 apr 2011. Lymph nodes removed 36 just 1 had cancer. F/U CT Scan-19 may 2011. "Cancer Free" as per doctors!
roma #123067 10-13-2010 02:48 PM
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Roma,

Click on the HPV and read all about it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
roma #123170 10-16-2010 05:02 PM
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Roma

Before you get too freaked out, even if you got an HPV infection it does NOT mean you would get oral cancer. When you read about how easy it is to spread HPV and the connection with oral cancer, you would expect this board to be full of sad sad stories about how our spouses all now have HPV and oral cancer. Yet it simply is not happening.

Personal example: While my tumor tested positive for HPV, my wife's cervical swabs all test negative for HPV. Yet we have been married for 26 years, faithful to each other the entire time and have had a very active sex life (still do). I sometimes worry that new readers will think they have to stop having sex whether they are caretakers or oral cancer patients. Short and sweet answer to your real question;
Oral Cancer is NOT CONTAGIOUS to spouses.
Hope this makes you feel better
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #123729 10-27-2010 06:03 PM
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Thanks again to all of you. Today we got know the results the lab slides showing my husband is HPV -. Cancer is only because of smoking,the doctor said.
Thank you all for your help and support. Cant thank enough for what i have learned here.


Caregiver to husband 40 yrs. Was diagnosed SCC 09/2010. Soft palate, lft of tounge. Stage 4 HPV-
Radiation 70 gy & chemo start Nov 1 End Dec 17/2010.
1MRI-7 Mar 2011. Neck dissection-14 apr 2011. Lymph nodes removed 36 just 1 had cancer. F/U CT Scan-19 may 2011. "Cancer Free" as per doctors!
Elianne #124158 11-04-2010 03:38 PM
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I got genitle warts when I was 13.I was a virgin & believe I got it from using the same towel my mother used after a shower,or the toilet seat.My mother got it from my step-dad.I had them removed.Then when I was 17 I got them again,but this time they went away on their own.In 2003 I noticed a white bumpy lesion at the back of my throat.Had a surgeon look at it ,he said it was "eckasia?"from my sinuses draining.2 days ago I saw an ENT Dr.& was told it could be cancer from the HPV virus.I am terrified!I don't have insurance & am trying to find a Dr.to do the biopsy that I can make payments to.I live in rural eastern Or.with not to many options.I'm having pain in my ear & jaw on the side of the legion,but have also had pain & swelling on the other side for several years which the Drs. said was my muscle swollen from fibromyalgia,insomnia & stress.Am so angry with these Days.I am also in remission from Hepatitis-C.The drugs for that were chemo-like,suppressed my immune system,gave me alot of side-affects,arthritis,gout & I believe triggered this HPV in my throat.I am 54.Any ideas out there?Thank-you,have been crying for 2 days now,funds are limited,don't qualify for any state or govt.help,what to do,what to do???

Lisa Ryan #124185 11-05-2010 05:31 AM
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Were/are you a tobacco user?

HPV normally attacks the cells in the back of the tongue or the tonsils. It also usually shows up in men. I said "usually" so that doesn't mean always. The only way to confirm HPV or not is to first be confirmed as having cancer and then the slides can be further tested for HPV. Forget the HPV right now and focus on finding out if you have cancer.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Elianne #136843 07-17-2011 06:53 PM
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Anne,
I can relate to your comment about the futility of the blame game...and to try finding out the cause/origination of the virus. However, imagine my shock when our ENT/Surgeon said to me after John's biopsy (he was still in recovery) and HPV+ diagnosis, "Have you had any abnormal pap tests? (No) .. well I don't want to cause any problems in your marriage, but, you know, this is a sexually transmitted virus!"
Not knowing a thing at that point about HPV, I was speechless.

Bonnie


Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.
johnswife #136855 07-18-2011 05:37 AM
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Bonnie,

You could have acquired HPV, passed it on and then cleared it within your body before it was ever detected by a PAP. Much is known about HPV but MUCH more isn't.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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