#136467 - 07/09/11 05:25 AM
Re: Manuka not proven but may be logical
[Re: Cheryld]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#136482 - 07/09/11 01:47 PM
Re: Manuka not proven but may be logical
[Re: Cheryld]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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It's been brought to my attention the link above isn't working (thanks Anne Marie!!) I am not sure if it's related to this site (I know they block some thinks here) or what - originally I confirmed this link in a pm - went back and checked it so its working for me... But ill try again.... Also I would like to reiterate TEASPOONS - I'm sorry I can't edit the original posting! I majke that mistake a lot - chemotherapy brain???? Dunno http://www.uhn.ca/Patients_&_Visitor..._RT_English.pdf
Last edited by Cheryld; 07/09/11 01:49 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#136485 - 07/09/11 01:55 PM
Re: Manuka not proven but may be logical
[Re: Cheryld]
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Joined: Nov 2006
Posts: 2,671
Anne-Marie
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006
Posts: 2,671
TN
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It's working for me, too, Cheryl - thanks!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#147046 - 03/11/12 05:03 PM
Re: Manuka not proven but may be logical
[Re: Cheryld]
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Joined: Feb 2012
Posts: 25
Brenda N.
Contributing Member (25+ posts)
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Contributing Member (25+ posts)
Joined: Feb 2012
Posts: 25
Missouri/Florida
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Cheryl, What type and brand of Manuka honey. It is hard to find UMF 16+ anywhere but online. Will bio active 5+ from New Zealand work just as well?
BrendaN. 58. Dx2/2/12 Non-smoker Mod drinker Avid exercise- Maui 1/2 marathon1/22/12- Not HPV. Prob cause- 35 yr amalgams-.2/8/2012 SCC, partial glossectomy (right side) SG IVa, 29 nodes, one w/cancer Erbitux 2/29/12 1/week-7 weeks. RAD 3/7/12 M-F for 6wks-clr PET 7/12-2ndclear CT 10/25/12
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#147070 - 03/12/12 11:28 PM
Re: Manuka not proven but may be logical
[Re: Brenda N.]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Try whole foods they'll have it. I don't know abut the 5+ it may not be strong enough. But seriously - try whole foods.
Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148890 - 04/30/12 03:12 PM
Re: Manuka not proven but may be logical
[Re: SEANA]
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Joined: Jun 2007
Posts: 9,934
ChristineB
Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007
Posts: 9,934
PA
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Your husband should see a dentist and have flouride trays made asap! He will need to use them every single day to help his teeth withstand the effects of radiation. This is very very important! My teeth werent so lucky and had severe radiation damage to them. I eventually had them pulled as they were crooked and all loose.
Have your husband enjoy all his favorite foods now as his sense of taste will change for a few months.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive
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#148920 - 05/01/12 02:16 AM
Re: Manuka not proven but may be logical
[Re: ChristineB]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Actually I was worried about the same thing the study I read said no (go figure!!!) I cant remember the details but it had something of sugar (as its not really a sugar) but I used it from week 3- 8 (two weeks post rads) and then stopped now I only us it if I have an oral irritation, (not often!!!) I think maybe long term use - might possibly cause issues but I also rinsed frequently and brushed x 2 and used a water pik to Clean around my gums (still do) so far so good... My dentist says he's happy ! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148986 - 05/02/12 09:20 PM
Re: Manuka not proven but may be logical
[Re: Cheryld]
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Joined: May 2010
Posts: 638
klo
"OCF Down Under"
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"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Joined: May 2010
Posts: 638
Sydney Australia
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my understanding of dental decay is that it is bacteria which goes on to produce acids that causes the problem. Sucrose in table sugar (and much of the additives in food) allows development of bacteria and plaque. Manuka is known to have antibacterial properties which is why it was tested in leg ulcers all those years ago. So, if honey has antibacterial properties making it difficult or impossible for bacteria to grow, and bacteria cause cavities, then the logical leap is that honey doesn't have the same issues as other sugars. Just joining the dots here - I might be missing something though.
This is my understanding only and I could have the concept wrong so would be pleased if one of the dental professionals might explain this better.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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#148997 - 05/03/12 12:04 AM
Re: Manuka not proven but may be logical
[Re: klo]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Thanks KLO... 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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