| | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | hello, 2nd dose of Erbitux for dad today.. he seemed to have a bit more energy today.. still very long days for him..he has been talking about the dog we just lost quite a bit.. saying that he hears her and sees her.. ugh so sad.. has anyone heard about people hallicinating on Erbitux.. and he is still on fentanyl and norco.. thanks so much! nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Nicki - I don't know about hallicinating on Erbitux, but I have heard of people seeing/hearing their passed on pets. So maybe your Dad really is seeing and hearing her and she's just trying to comfort your Dad. You could ask the doctor about the Erbitux in case it's important that he know about what seems to be hallucinations, but if seeing the dog is helping your Dad to cope, then maybe that's a good thing.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | It could also be the pain meds causing him issues... Good luck with treatments glad your dad is feeling better - hugs and prayers to you!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2010 Posts: 75 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2010 Posts: 75 | My husband had hallucinations while on Erbitux but he is off that now and they are continuing so I don't think they were entirely due to Erbitux but that is when his started.
CG to sp age 53
4/10 BOT IVb
6/10 Ttl Gloss Lrngectmy L Mndbltmy 5+ Nodes
7/10 Cispl & Rad
1/11 recur lung mets
2/11 Clin Tr Erb Carb 5FU last 5/11
7/11 Tumor growth began wkly Bleo, Taxol, Carbo
10/28/11 Hospice; Passed 11/7/11
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | thank you all for your responses.. i think the dog is comforting my dad.. maybe this is my dad's way of processing it, the shock of it all.. so hard to tell.. the dog was a huge part of our family, she was almost like a person..haha.. well she thought she was.. lol.. i am deefinitely going to ask the doctor on Monday.. thank you all again..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Nicki, pallative treatment with Erbitux is probably because he has already been treated with Cisplatin for his concurrent chemo-radiotherapy. Recurrent cancer becomes immune/resistant to Cisplatin. Your dad's onco might be looking at controlling the disease progression wth Erbitux, if your father responds well - which I am hopeful. The treatment may be followed up with Total glossectomy and re-radiation (to take care of PNI).
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | Wow thanks Eshwar! yes, that is exactly what they are doing.. We just had his first visit after only 2 treatments and oncologist is very pleased with his response so far.. dad has been in bed for the last 4 monhs and the last week he has been up a lot more.. I am not looking for a miracle, just some comfort for dad and a better quality of life.. he is a trooper and he will do what he has to do even though he is probably exhausted, mentally and physically..
Thank you all again for your continuing support and words of encouragement and knowledge..
xoxo
nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So glad your dad is responding!!!:) take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Glad to here the treatment is helping - best wishes for some really good days together.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | Hi guys! yes, i am so happy he is responding too, he is writing his notes that he wants to be back on his bike (motorcycle).. haha God Bless him! its great to see him up and about after 4 months! he doesnt even remember the last 4 months.. he wants me to put more minutes back on his phone so he can txtd again.. makes me happy for him.. thank you all again.
nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
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