| | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | hello the nightmare of this vicious disease has returned, although did it really every leave? ENT and pathologist confirmed on thursday that dad's cancer is back.. they said we can give him next week off and bring him back in the following week to speak with the medical oncologist and surgeon.. surgeon did say that the only thing that can be offered is the Erbitux, of course it wont cure it but can make a difference in size of tumor and give dad some more time and less pain.. any thoughts would be greatly appreciated.. God Bless Nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Nicki, I was afraid of this! I just had a bad feeling from everything you have written about your father. I am very sorry! Please take him to a cancer center for a second opinion. It could make all the difference!
((((HUGS))) and prayers to you and your father.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Agreed please get a second opinion... Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | hello christine and cheryl.. do you really think we should get a 2nd opinion? he has been in bed for about 2months, and pretty much only gets up when he has to and to use the washroom.. i plan on calling his medical oncologist on tuesday after the holiday.. the biopsy results from other areas of concern are not back yet either.. i just feel bad tugging him around from place to place.. and with him completing the chemo/radiation pretty much just one year ago, and the salvage surgery in december, how much more could they do, and could he take?.. im torn :-(..
thank you both again..
nicki :-(
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Was he originally seen at a cancer center? If not take him there for a second opinion. There is always quality of life to consider. I agree - but cancer centers are used to dealing with tricky and aggressive cancers. Do hear what the surgeons have to say. Did they tell you it's in his lungs? Are they sure it's back - even without the biopsy results? Where is it? There are a few questions to be answered if you and he decide to just do the Erbitux as palliative then that's fine - it's a hard personal choice to make but just make sure you have all the information first. Hugs to you and your dad!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Nicki, if there is a chance your father will recover then take him to a top notch cancer center for a whole team to evaluate him. That might be his only chance to beat this. It cant hurt by getting a second opinion. It is probably the hardest decision you and your family will ever have to make.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | hello, dad's cancer is back on the left side of what is left of his tongue.. he also has perinual invasion which i think makes it a double whammy! we went ahead and decided to do the chemo, which he will start on Wed., as anyother person he will respond or he will not, if he does they will come up with a "protocol" does that make sense? i feel my dad is strong enough to keep on trucking and do what he needs to do, but I do not feel in my heart trucking him around to a different team of doctors would be beneficial.. am i wrong for this? :-(.. you are absolutely right this is the hardest decision we have ever dealth with.. i want him here with us always, but i cannot stand to see him struggling like this.. we just increased his patch to 75, and now he is taking less norco, which is good.. so i can only hope and pray to that powerful man above that he does respond to this chemo, and worse case scenario just "live with cancer"... thank you all you so much for being here for me and living as heros for others..
xoxo nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Nicki, you are in such a difficult situation. I understand what you are going thru. Of course you only want the best possible outcome for your father. You are a great asset to him and a wonderful advocate. Keep up the good work. If it were me, I would go to another cancer center and hear what they can do for him. It doesnt hurt to try and if they cant do anything differently with different results then you will know. Good luck!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | thank you Christine.. he starts chemo this wednesday, i would really hate to push it back any, because of how aggressive this cancer is with the nerve invasion, that part scares me.. eeek.. i wonder if it is possible to get him in for an appt while doing the Erbitux? ugh not sure.. im going to call now.. thank you again! nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck sorry to hear it's back... Do try for a second opinion. Hugs and I'll say a prayer foe you and your dad!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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