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#136239 - 07/03/11 04:37 PM Gum disease? bone loss?  
Joined: Apr 2006
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DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
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Washington
Hi All, well after 5 yrs. I am now having problems with teeth.. and bone loss. My dentist said I will need 3 teeth removed. This is not a happy thought for me.

Anyone else going through things like this? I thought I was doing good job taking care of my teeth but in about 8 months that all changed. It is on right side where the radiation was applied the most.

I will need to see a oral surgeon. I have been trying to find out more information on what I am going to go through.

Thanks Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#136241 - 07/03/11 06:10 PM Re: Gum disease? bone loss? [Re: DM32ASA]  
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Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Hi Diane!

As patients that have been radiated to the head and neck we have challenges other will not face. One of those challenges is tooth decay and that is generally two fold, from the dry mouth saliva actually helps keep your teeth clean and healthy and the other is that radiation will continue to damage your teeth over time.

Keep with the flouride trays and keeping a healthy mouth w biotene products and probiotics and keep a good relationship with your dental professionals.

Hope that helps

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#136252 - 07/03/11 10:46 PM Re: Gum disease? bone loss? [Re: EricS]  
Joined: Jun 2007
Posts: 9,467
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
Hi Diane!
If you need to have teeth pulled make sure you do the Marx Protocol of 20 HBO before and 10 after your tooth extractions. You do not want to risk osteoradionecrosis. Radiation damage ruined my teeth and they had to be removed. Here is a recent thread about HBO. Best of luck!

http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=136251#Post136251


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#137217 - 07/24/11 05:48 PM Re: Gum disease? bone loss? [Re: ChristineB]  
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Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Washington
Thanks CristineB for the info.
I am at a loss on the information. I guess I do not get it. If I only have 3 teeth extracted why would I need this type of procedure?? I have not received my appointment yet from the University. Still waiting. Trying to keep the thrush under control as well.

Sometimes the side effects from this Cancer just wear you Down frown


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#137245 - 07/25/11 11:27 AM Re: Gum disease? bone loss? [Re: DM32ASA]  
Joined: Nov 2006
Posts: 95
Barbara S Offline
Supporting Member (50+ posts)
Barbara S  Offline
Supporting Member (50+ posts)

Joined: Nov 2006
Posts: 95
Mississippi

My husband is also getting close to that five year mark and has been trying to take good care of his teeth with frequency cleanings etc. He just had radiation treatment for the cancer. He had one root canal and one extraction on April 12 and April 13, 2011. He went through 20 hyperbaric treatments before them and 10 after at for 2 hours per day + about another 2 hours per day travel time and at a cost of $2,000. per treatment. Now three months later he has an infection and is on his second round of antiobiotics. The hyperbarics is supposed to help the mouth heal properly after the extraction. Just make sure your dental people are aware of your oral cancer history and also that they do adequate follow up afterwards since we thought Michael was doing well, but now he has this infection. You are right about the long term after effects of cancer and the treatment being no fun.


Barbara S
C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
#140036 - 09/15/11 10:13 PM Re: Gum disease? bone loss? [Re: Barbara S]  
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Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
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Joined: Apr 2006
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Washington
Barb, Thanks for the information.. Yes, I will be going through this procedure. I am on antibiotics now, I have no date yet when to begin the chamber. I am guessing after I finish the antibiotics. Does this sound right? I am concerned I will end up loosing all. cry

thanks... take care. smile


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#141644 - 10/17/11 05:29 PM Re: Gum disease? bone loss? [Re: DM32ASA]  
Joined: Apr 2006
Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Washington
Still waiting to go into chamber. Will be coming up soon just finishing a few cavities. I am on Medicare.. Are these HBO treatments covered?? I can not seem to find any information. Thanks,


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#141672 - 10/18/11 02:47 AM Re: Gum disease? bone loss? [Re: DM32ASA]  
Joined: Jun 2007
Posts: 9,467
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
When I went thru HBO, my insurance company covered them. I do not know if Medicare will cover this or not. I hope they will as HBO is quite expensive. I have heard cost vary greatly. It can be anywhere from $400 to $2000 per session, with most being around the $700 range. Please post if you have this covered by Medicare as Im sure many members are also Medicare users.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#148907 - 04/30/12 10:11 PM Re: Gum disease? bone loss? [Re: ChristineB]  
Joined: Apr 2006
Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
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Joined: Apr 2006
Posts: 583
Washington
This is a quick follow up.. I have been gone from this Board for a long time. Sorry.

I did go through the Chamber in Nov. and Dec. finished Dec. 24th. Was home for Christmas. It was very helpful in the healing and I could see a difference in the gums. To answer my own question above; Medicare did cover the treatment dives.

smile Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#148919 - 05/01/12 02:08 AM Re: Gum disease? bone loss? [Re: DM32ASA]  
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Posts: 5,260
Cheryld Offline
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Cheryld  Offline
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Patient Advocate (old timer, 2000 posts)

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Toronto canada
Yeah!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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