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Joined: Jun 2010
Posts: 58
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jun 2010
Posts: 58
Ellen,
I, too, wish my John's OC would have been caught earlier. He complained of a sore throat for months, and 3 docs told him 3x it was his allergies. If only it had, I dream that we would not be in the situation we are in now with mets to his lungs.

Perhaps I may join the 'awareness fray' and spread the word about OC to the many many people unaware of this evil disease and it's consequences. It truly needs more voices.


Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.
Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
God bless you and your husband Bonnie! Will say a prayer next treatment works an remission happens! Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jul 2011
Posts: 33
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jul 2011
Posts: 33
When I first saw my regular GP for the tongue pain, I was also having serious stringy saliva. He should have known right away that was a red flag that something else was going on and sent me off to an ENT specialist ASAP, not fooling around for another two weeks when I had to return to him as the pain got worse. C'est la vie.

Joined: Jul 2011
Posts: 33
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jul 2011
Posts: 33
Like most folks, Ellen, I think we tend to think something like a sore throat IS minor and will either resolve itself or trust an MD to prescribe something if it's more serious but not really serious, like strep throat. I know I scanned my Merk Manual for every conceivable thing this "thing" on my tongue might be and delighted myself every time I would come up with my own diagnosis. (Oh, okay, that's what it is...)But all it took was the ENT doc, whom I saw a good 4 weeks into the pain, who said in no uncertain terms "it's a tumor," and I put down the books and took it seriously. Because it was serious.

Here's hoping for a good outcome for your loved one.

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