| | Joined: Jun 2011 Posts: 5 Member | OP  Member
Joined: Jun 2011 Posts: 5 | Hello, I am new here and very frightened! I went to the ENT for a Parotoid cyst which turned out benign thank god, but he was more concerned about my left tonsil. He had done a CT scan for the cyst and then did a FNA on the lymph node which is swollen and he said he felt a growth of some sort on it. I am scheduled for surgery to have the tonsil removed for biopsy. He showed me on the camera, my left tonsil and it looked like a clump of ulcers and it was enlarged. I guess I need to calm down until the biopsy, but this is very frighting. I was also diagnosed with chronic pancreatitis a few months ago and I feel terrible! Which makes everything worse. | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Welcome to OCF Sheree, glad you found us sorry you had to!
Yes it can be frightening, the not knowing has to be the worst feeling while you wait for these things. I know its hard but try and not let worry take over until the biopsy results are in. You've found the best place for support and information but do yourself a favor and don't get more info then you may need or be ready for just yet. All it will do is keep your mind going and that's not going to help at this point.
We have a saying that its NOT cancer until a biopsy says it is so pets wait for.those results before taking any further steps other then dealing with fear and anxiety. Breath and know that every survivor on this forum is proof that cancer is not an automatic death sentence and there is life after cancer if that's the case.
Breath...believe and keep your mind occupied until you get your results my dear.
Keep your chin up
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Sorry for the typos typing on my phone doesn't make for good spelling.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sheree - welcome!! Eric gave you some good advice- try not to worry until you get. Definitive diagnosis !
The biopsy isn't too bad - you'll be okay - waiting for the results is hard - but hopefully the news will be good!!! Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2011 Posts: 5 Member | | OP Member
Joined: Jun 2011 Posts: 5 | Thanks everyone! Well I feel terrible today but it is from the Chronic Pancreatitis and I am due for my monthly shot, so that is to be exspected. I am getting a sore throat and my son had a sore throat 2 weeks ago so I am hopefull that this is only my body fighting this infection and all will be well. You are right it is not good to look up to much just yet, it just freaks me out. One day at a time!
Thanks again!
Sheree Donaldson
| | | | | Joined: Jun 2011 Posts: 5 Member | | OP Member
Joined: Jun 2011 Posts: 5 | Just an update, I had a tonsilectomy today, they took both tonsils and good news the FNA of the lymph node came back negative! I will find out about the biopsy on the tonsil next Thursday.
Sheree
Sheree Donaldson
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Sending out positive thoughts that your biopsy is negative--keeping my fingers crossed...and my toes and my eyes, too!
Sandy
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Jun 2011 Posts: 5 Member | | OP Member
Joined: Jun 2011 Posts: 5 | Thank you Sandy177! I am trying to keep a positive attitude. He said he took the right tonsil out because it was unusually firm, but it did not have a mass.
Sheree Donaldson
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes fingers crossed for you...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Sheree, positive vibes your way.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2011 Posts: 5 Member | | OP Member
Joined: Jun 2011 Posts: 5 | Thank you all for your support! The biopsy came back negative. I am so relieved. My prayers go out to all of you! Before this I was totally unaware of tonsil cancer. It is a terrible disease and you all should be commended for all you are doing to help people who are going through this. God bless all of you and thanks again!
I think forums like this are so important.
Sheree
Sheree Donaldson
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Sheree, congrats!!!! Its always a great day when someone doesnt really need to be here. Be well!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Hi Sheree!
CONGRATULATIONS!!! Great news! I am like you, I didn't know anything about oral cancer until my husband's experience. We won't know if he really has it or if he doesn't for another month or so. But, regardless of the outcome, the OCF and the City of Hope (as long as their 2nd opinion is correct) will receive the lion's share of our charitable donations in the future. Those will resume, I hope, as soon as we get a handle on the bills caused by this chapter in our life.
I am forever indebted to Brian Hill and all the kind friends on the forum for helping eventhough what we went through pales in comparison to what so many others have endured. It is a family.
Best wishes for a healthy life!
Sandy
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Congrats that is totally awesome!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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