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#134050 05-09-2011 09:20 AM
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So I got a call this morning stating that the biopsies that were taken were chronic inflammation. In my research I do know that chronic inflammation can develop into cancer. I am still in a considerable amount of pain. He wants to see me back in two weeks to check it again and make sure it has healed. What do I do if it hasn't healed? I still have a difficult time talking. Is this something i am going to have to live with? Am I at more risk because it is chronic inflammation? Just wondering. Should I ask for another PET scan?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #134056 05-09-2011 01:59 PM
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Angelia, a PET would light up the inflammation. Congrats on the great results!!!! Im sorry but I have not heard of it being a proven fact that inflammation will turn into cancer. If you are having healing issues, then HBO would be the route to take. You have done those before successfully.

Im sorry that you are having problems. I have many of my own ongoing issues that I must overcome every day as do most of the other oral cancer survivors. There are very very few survivors who do not have any after effects or pain. I know it seems like it never ends and that you are very upset about this. Think about it this way....you are still here which is the most important thing there is!!!! While your quality of life isnt what you would like it to be, you still have a quality of life to discuss. We all would love to be symptom and pain free but sadly our bodies dont like to co-operate with our minds!

Best wishes with everything and congrats again smile Be well!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #134057 05-09-2011 02:20 PM
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Thank you Christine. Yes, I a, exstatic it wasn't cancer. No, O hate the pain, but it beats cancer and I can get pain relief. My ENT is going to see me again 2 weeks to make sure it is not progressing or getting down to bone exposure.



Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #134256 05-17-2011 09:11 PM
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I'm so glad it was just a scare and as painful as it may be that's a good thing - I mean that it's not cancer. Did you ENT tell you what might be causing the inflammation?


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #134477 05-24-2011 03:38 AM
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I got back to the ENT on Wednesday. Looks like HBO is in the very near future. I am waiting for school to be out to even think about starting it.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #134487 05-24-2011 07:14 AM
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Posts: 5,260
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Angelia, Maybe one day at a time is what you need. I wish there were a way to ease your mind about worrying so much. Worries can do strange things with a human mind and create problems that we sure don't need. Maybe you should just tough it up and enjoy each and everyday. Do as I do. When something bothers me to the extent of worry, I take it to a shelf, place it there for another day and head for the outside, the basment or the garage and put that lost energy to work.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #134491 05-24-2011 08:58 AM
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"OCF Canuck"
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No one will be able to PROMISE you that chronic inflamation will not become cancer - the same way that they can't PROMISE you that getting in your car today will not result in a bad accident. Take the good news - no cancer - and try very hard not to buy another day's problems with "what if's"..........

You have had so many things happen to you that mentally you are almost programmed to expect the next shoe to drop, and I have very similar tendencies. But this type of "stinking thinking" will just wear you out completely and I can PROMISE you that anticipating bad things not in evidence will buy you a very unhappy existence. You deserve much better than that, and you know it woman!!

Hugs, and pass it on!

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #134718 05-30-2011 07:14 PM
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Amen Donna. Well said.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #134738 05-31-2011 08:20 AM
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Wise words from Donna.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18

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