| | Joined: May 2011 Posts: 13 Member | OP  Member
Joined: May 2011 Posts: 13 | Hi,
I just wanted to introduce myself. I am throat cancer survivor and new to the forum. I am also a 7 year G-tube feeder. Hopefully we can support and help each other.
Best,
Jesse
Jesse Jones
Throat Cancer 1984, 1987, 1988 Stage IV squamous cell
Modified neck dissection 1984, 1987
Radiation 1988
G-tube since 2002. use mic-key button 20FF
use only fresh unprocessed food meals thru tube
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Awesome - and welcome... There are some great people here - few of them long term g tube users... It's great you've kicked this disease... You are an inspiration... I'm fairly new in the battle - hope to be where you are some day! Take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF, Jesse! Its always nice to have another survivor join the forum. I read you other post about tube feedings and your site. It appears that this could be helpful to several feeding tube users. Please be careful to follow the rules and do not sell things on the OCF forum.
When you have a chance, please add a signature so we can get to know you easier. Its under the 'my stuff' tab, then click on 'profile'. Scroll to the bottom and type your info in the box on the bottom.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 |
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Jesse, great to see you here and congratulations on your survivorship!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: May 2011 Posts: 13 Member | | OP Member
Joined: May 2011 Posts: 13 | Hello and thanks for the warm welcome. It's great to be alive and to have survived for 27 years since the first occurrence. I wish everyone a long life!
Jesse Jones
Throat Cancer 1984, 1987, 1988 Stage IV squamous cell
Modified neck dissection 1984, 1987
Radiation 1988
G-tube since 2002. use mic-key button 20FF
use only fresh unprocessed food meals thru tube
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