 
#42147 08-13-2002 02:45 PM | | Anonymous Unregistered | | Anonymous Unregistered
| Hi Group,
Just wondering how those who are currently undergoing treatment are doing - those that come to mind are Joanna and Baron50.
My mother started her 5th week of twice daily radiation and her 5th cisplatin this week. She is surprising us all - I hope it's a good sign! The doctors admitted they were skeptical about whether she could keep up the treatments but they have been very encouraging to her and she seems rather proud - anything to keep things going!
Of course she has run the gamut of symptoms, battling a round of thrush, now has obvious mucositis and increasing problems with swallowing. Last night I could hear her gurgling all night - was afraid she was going to choke! I assume this is normal but did suggest she start propping her head up at night - any other suggestions? I was disappointed that her blood counts have fallen to the point where they are going to start Procrit and Neupogen shots tomorrow - trying to keep her on track for one last cisplatin infusion. Fortunately though she does not seem any more fatigued than usual.
She has only lost about 7 pounds surprisingly. She is teetering around 99 lbs - but as long as she can maintain that with her 1800 calorie liquid diet - they won't do a stomach tube (unless she can no longer swallow).
Would like to hear how others are progressing - I hope as well as my mother.
Cynthia | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sounds like your mom is doing well - the next 3 weeks will be the hardest I was good - not great - until my 30th rads treatment - mine were once a day - though I think overall we are getting the same amount - she gets probably 2 smaller doses daily. I was done at 33 - missed my last cisplatin dose but had 2 full doses, like ibsaid I was fine until almost the end - the last 10 days have been hard - but it's okay I think I am finally improving - I have been able to eat/ drink all along - not that much - 1200 but I've now lost 14 lbs - but I could afford to - I was 161 at the start. Tell her to hang in - she's a trooper.
Take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Cheryl,
Please note the dates on the strings that you are reading before replying to them. This one is from August 2002.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yeah - I noticed after the fact and a bunch of them here were from then they were all on the newest potting page. Sorry.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The original post is 9 years old. I have locked it so no more posts will be made to this thread.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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