| Joined: Apr 2011 Posts: 9 Member | OP Member Joined: Apr 2011 Posts: 9 | Hi, I wanted to introduce myself. I am 53, and I am currently dealing with my 3rd bout of a low grade mucoepidermoid carcinoma. In 1997 I had a single lymph node removed, but no primary was ever found. In 2009, the (possible) primary reared its head at base of tongue, also lymph nodes both sides. I had radiation/chemo in 2009, got through that fairly well and fully recovered. Now a recent scan shows activity in lymph nodes, and activity in tongue. I am facing a partial tongue resection and neck dissection, both sides. I am interested in any info on tongue resection and recovery, and also on the robotic surgery option.
Any guidance appreciated.
1997 MEC low grade 1 neck node removed--no primary, stopped monitoring in 2003 (BIG mistake!) 2009 BOT, bilateral lymph IMRT+Cispl 2011 recurrence, hemi-glossectomy, margins clear, reclassified hi-grade 2012 recurrence, total G + laryngectomy, 2013 Mets, now in chemo
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Judy welcome to OCF. Im sorry you have been thru so much. Ive been thru recurrences but have not had OC on my tongue. Im sure you will soon hear from some members who have undergone similar surgeries. Best wishes! Here are some links to the best hospitals and top cancer centers. http://www.oralcancerfoundation.org/resources/cancer_centers.htmhttp://health.usnews.com/best-hospitals ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi I had a hemiglossectomy, neck dissection, and am just finishing up rads, and chemo if you have any questions feel free. This cancer is likely new is it scc?
Take care...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2011 Posts: 9 Member | OP Member Joined: Apr 2011 Posts: 9 | Hi--no, muco-epidermoid, low grade. I had 2 excellent years of no problems after chemo/rad, so that was good. Never had any major surgery. Where did you go for treatment? Can you tell me more about it? JudyL
1997 MEC low grade 1 neck node removed--no primary, stopped monitoring in 2003 (BIG mistake!) 2009 BOT, bilateral lymph IMRT+Cispl 2011 recurrence, hemi-glossectomy, margins clear, reclassified hi-grade 2012 recurrence, total G + laryngectomy, 2013 Mets, now in chemo
| | | | Joined: Apr 2011 Posts: 9 Member | OP Member Joined: Apr 2011 Posts: 9 |
1997 MEC low grade 1 neck node removed--no primary, stopped monitoring in 2003 (BIG mistake!) 2009 BOT, bilateral lymph IMRT+Cispl 2011 recurrence, hemi-glossectomy, margins clear, reclassified hi-grade 2012 recurrence, total G + laryngectomy, 2013 Mets, now in chemo
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I'm Canadian so I was treated at princess margaret hospital in Toronto by a dr. Johnathan Irish. He is awesome. The hospital is one of the top 5 in the world so I'm told, he did a great job. It was a 10 hour surgery -12 hour surgery and I was rebuilt by a terrific micro surgeon.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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