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Joined: Mar 2011
Posts: 130
Likes: 3
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 130
Likes: 3
Thanks Eileen, I got it today and just applied it. My Ro's NP said that it is no different from the Aveeno moisturizer they recomended but I don't know how much confidence I have in that. From what I read on Amazon from customer comments folks LOVE this stuff. So thanks for telling me about it and I will let you know how it's working for me. I feel like I'm doing very well. This is the middle of my 5th week and still no mouth sores and no PEG. The only thing that sucks about eating is the taste (not the pain) and I'm wanting to excersize my throat muscles anyway.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
I don't like Aveeno just for general use. I think I bought it for itching. Wound up giving it away. I can't imagine it being just as good as Biafine.

I only remember 3 people on this board that used manuka honey and none of them got mouth sores. However, not eveyone winds up with mouth sores. I had none and didn't even know about the honey.

You seem to be doing well. Hope that continues. By this point everything tasted like cardboard. I think I could still taste coffee and lived on coffee or butter pecan Ensure Plus. I didn't have chemo so didn't have those side effects to deal with.

The end is in sight. Keep your spirits up and let us know how the Biafine works.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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