Previous Thread
Next Thread
Print Thread
Joined: Dec 2010
Posts: 99
Karenj Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Dec 2010
Posts: 99
My husband was diagnosed with T2N1M0 at the time of his diagnosis. When he had a reoccurence recently the Dr.s write-up now says tumor was Mod diff., Stage 3 of 4 and he had 4 nodes, largest 2.5cm, with extracapular extentions so that would be T3N2M0 I think. So should I use this when referencing his stage?

I know the type of cancer you have doesn't change even if it shows up somewhere else in the body as the cells will prove if it is a reoccurence or a new cancer.

Just curious. Karen


CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
I will tell you what my Stages were, it may help you. The first time I got SCC, I had 2 completely seperate tumors each was Stage 1. The next year my tumor was very very tiny and was a Stage 1. It was caught immediately and removed about a week later. The third time I got sick I was StageIV, the cancer had invaded my jaw bone. My doc said I would have been a Stage 1 again except that the cancer was in the bone which automatically pushed it right to Stage IV. Hope this helps.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Dec 2010
Posts: 99
Karenj Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Dec 2010
Posts: 99
Thanks Christine - This stuff is all so confusing! I am looking up words the Dr.'s write in reports in a medical dict. just to understand. When they talk with us it is put into words we can understand but I tend to forget the details after leaving the meeting.... So reading the reports tells the whole story I am finding. My sister tape recorded the "after surgery" talk and I am so glad she did as I didn't remember a lot of what he said. Was very helpful. We find out tomorrow if I have been worrying for nothing - hope so!


CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Always take a tape recorder with you to the appointments. Most doctors wont mind being recorded. I will keep you and Emmett in my prayers. Praying for good test results!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Feb 2008
Posts: 19
Member
Offline
Member

Joined: Feb 2008
Posts: 19
Christine, I was wondering when you said it was back in the jaw, what kinds of symptoms were you having? I get severe jaw pain on the same side of all of my problems, it comes on quickly and very painfully and is gone about as quick. It doubles me over most of the time. The docs are pooh poohing me and saying it may be tmj but the pain is no where near the joint it is in the front part of the jaw.


51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5