#13287 04-16-2002 09:48 AM | Joined: Apr 2002 Posts: 20 Member | OP  Member
Joined: Apr 2002 Posts: 20 | Hi, I'm Veronica. My mother is currently going through radiation treatment for her cancer. She had a radical neck dissection on Jan. 18, 2002. She has been to hell & back. I admire her strength through this ordeal. I have searched all over the internet for a place to go to talk to people who have been through this & until now I have been unsuccessful. I just want to say I greatly appreciate this site & the people who have taken time to reply with such kind & caring words. I hope that I will be able to show the same comfort to someone that I have been shown in the past day. This is all still so new to me & my family. We are trying to get through this one day at a time.
I have learned that life is too short. Spend as much time as you can with you family & loved ones. You never know what tomorrow will bring.
| | | | | Joined: Oct 2010 Posts: 9 Member | | Member
Joined: Oct 2010 Posts: 9 | Hi, I am Patty. I have been lurking for 2 years as I initially had trouble joining for some reason. I had a 90% glossectomy 3 years ago and have been cancer free since. Thank God for this site as I have had to learn how to live with the new me. I have great trouble swalllowing and am currently trying to learn what I can eat with no bottom teeth without killing myself. I feel like I already know you guys. Now I have to figure out how to add my condition information. | | | | | Joined: Oct 2010 Posts: 9 Member | | Member
Joined: Oct 2010 Posts: 9 |
Last edited by patty 100; 11-04-2010 02:45 PM. Reason: put in twice
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Patty - Glad you're here and doing so well. If you want to add stuff to your signature below your message, just go to top of this page where it says "My Stuff", click on "Profile" and scroll all the way down to the bottom of the page where it says "Signature" and you can fill in whatever you like re your condition. For help with abbreviations for certain procedures, here is a thred of abbreviations: http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=38706#Post38706And here's another list in alphabetical order that I put together when my son was undergoing treatment: http://web.utk.edu/~aalix/abbreviations.html
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2010 Posts: 9 Member | | Member
Joined: Oct 2010 Posts: 9 | Thanks Anne Marie-I will go there now and add my condition info | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Veronica, welcome to OCF. Glad you have found this site, it can be a wonderful place for caregivers to share their experiences. You will learn alot from OCF. There is a search function both here and also on the main pages. Even those of us who have had an easy time still have many struggles to overcome with battling oral cancer. Nobody ever gets away with having an easy time of it. Wishing you and your mother all the best. Patty, welcome to OCF as well. When beginning to post, its good to start your very own thread so we can better get to know you. A signature line is also very helpful. There is a swallowing study going on that you may want to take advantage of. There is also a list of easy to eat foods. I will post the links at the bottom .Best wishes with everything. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=94621#Post94621http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=123344#Post123344
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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