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4real #132903 04-12-2011 06:32 PM
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I just got home from mayo. The doctor there is not worried about the lump he says it does not feel like a cancerous tumor so he said to keep an eye on it. As far as the pain I am having, he wants to do an ultrasound on my neck and go from there. He thinks the ultrasound will be normal. He is thinking alot of the pain is neurological. So if all tests come back o.k, crossing fingers, will have to see a neurologist. Thanks everyone, will keep updating.

DAVE

4real #132911 04-12-2011 10:47 PM
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Sometimes a lump is just a lump. While I know the relief you feel at the moment, and I am certainly not suggesting you get too intense about it - keep an eye on it yourself and if it changes get back to your doctor. In the meantime - celebrate!!! Glad to hear the good news. Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #132916 04-13-2011 07:09 AM
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Agreed - good news is always a plus but do keep an eye on it!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #132961 04-14-2011 12:08 AM
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so you must live somewhat close to where i live if you went to mayo...i had my treatment done at u of m in minneapolis.
I had a great doctor there. But I have since moved to fergus falls MN, which is 3.5 to 4 hours west of u of m on 94. Just wanted a change in scenery! I hope that it is just neurological.

But even if it is just what that ENT said, are they going to do anything about it? My dad had surgery for his TMJ. And if yours is so bad that it is causing facial swelling and what not, wouldn't you think they would do something about it? I sure hope so.

Nerve pain can be a big pain in the butt! Also, minds like to play some pretty nasty tricks too. Not saying that is what urs is doing, but since my treatments have ended, I get these pains after my scans show new "activity", and I hate my brain for doing that, lol.

Hope your ultrasound comes back with no issues!!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
bethers0808 #132970 04-14-2011 06:21 AM
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Hi Bethers,
I live in wisc, a couple hours n.e of rochester.
Rochester is an amazing place. Just dont want to be there. My wife had her surgery at the U. They are great people there too.
If all comes back clear for cancer, I think they want to get a neurologist involved to figure out whats going on.
I did have a severe back injury quite a few years ago, but the damage was in the lower back, but maybe I also did hurt my neck and now I am getting some nerve damage.

Thanks and best wishes


Dave

4real #133009 04-15-2011 07:38 AM
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4real Offline OP
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Thanks everyone so very much for your help and information.
Ultrasound came back good, one enlarged node, but clear.
Tounge pain is slowly gettting better, prescription for lidacaine.
On to see the neuro next.

God Bless

Dave

4real #133027 04-15-2011 10:20 PM
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are they going to biopsy the enlarged node at all?


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
bethers0808 #133043 04-16-2011 08:16 AM
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4real Offline OP
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They said they didnt need too.
Is that something they should?

Dave

4real #133049 04-16-2011 10:07 AM
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better safe then sorry. if it was me i wouldnt get the biopsey.
we all know how that worked for me last time
but if your comfortable not getting a biopsy then dont.


48 yo male smoker beer drinker biop dx 2/15/11 stg iv scc tongue
teeth out 2/16/11
peg 2/21/11
pet 2/22/11
total glossectomy 4/11/11
18 nodes removed. 1 cancerous margins clear
rebel6211 #133053 04-16-2011 01:32 PM
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Yes... I would agree. An enlarged node is definitely something that would make me push for a biopsy. Best to be safe.
Some people have been diagnosed, when a node showed cancer but they couldn't find a primary.

It won't hurt to be sure. Good luck


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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